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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello there aCraftyStitch, and welcome! It sounds like you have good grounds to suspect celiac disease. I'd write in bullet points a summary of what you have written above, in case you forget some of the key details. It will also be helpful as occasionally doctors need a bit of convincing that celiac tests are necessary! Also, get the doctor to...
  2. cristiana
    Thanks so much. It will be nice to know what's behind it all but I'm not looking forward to wearing a monitor. Is it 24/7?
  3. cristiana
    I've been told that my immune system was "somewhat compromised" due to coeliac disease by a consultant gastroenterologist, with reference to repeated bouts of shingles. But I wonder if that's because I've taken a long time to heal and perhaps it was somewhat compromised while my antibodies were still relatively high. As you can see, I'm not a scientist...
  4. cristiana
    No, but interestingly I'm pretty sure they kicked off after I'd been taking some sort of medicated lemon drink for flu/colds, which I've since learned can contribute. They went away but have since come back without me drinking those lemon drinks. Perhaps taking a particular medication can kick start that sort of issue, for it never to truly resolve.
  5. cristiana
    I'm afraid I don't know. I've been told they are normally benign though. I hope so!
  6. cristiana
    Absolutely right there. But my, ectopic hearbeats are so difficult to ignore. Most unpleasant. You notice one, it's kind of scary, then the surge of adrenaline brings on more...
  7. cristiana
    Hi everyone I'm back having hospital tests - hooray! - this time for very bothersome ectopic heartbeats. The weird thing is they can feel like the sort of fluttering/pressure I get when I have too much gas in my stomach so it is easy to confuse the two. I'm not sure if there is any relationship with celiac disease, but I have been looking online to...
  8. cristiana
    Thank you for letting me know. It is quite appealing nonetheless as currently I hardly dare eat out... I used to get glutened so often and now my symptoms are so bad I feel it isn't worth it. This could be a wonderful way of getting some freedom back.
  9. cristiana
    Hi Docaz Is it possible to buy this in the UK, and if so, can you give me the UK supplier details? Cristiana
  10. cristiana
    Sorry Trents, I misunderstood what you said. Just for clarity fflstuart77, here's a helpful post about temporary lactose intolerance from Coeliac UK. https://www.coeliac.org.uk/information-and-support/coeliac-disease/conditions-linked-to-coeliac-disease/lactose-intolerance/
  11. cristiana
    That's really interesting, Trents, I didn't know that. Mind you, for some reason I could tolerate casein but milk, yoghurt etc went right through me. (Sorry - TMI!) Maybe my casein consumption explains why I have taken longer to heal than I'd expected.
  12. cristiana
    I agree, Trents. Hello Ailish! I too felt quite unwell and continued to do so post coming off gluten - but things did improve when I got the hang of the diet etc. Before I ask you a few questions, here's a great link which I believe will help you. Are you still eating dairy products? If so, this may be contributing to the bloating and...
  13. cristiana
    Hi - yes, too much weight! Also, my villi are healed.
  14. cristiana
    Hi fflstuart I have been gluten free for 8 years, and very conscientious about it, and yet my tTG has never dropped below 14. I used to worry about it but my gastroenterologist isn't at all worried - he actually said to me that if I lived on a diet of rice and water my figures might never get lower than that. Interestingly I have been reading...
  15. cristiana
    Hi Checks Thank you so much for contacting us to update us. I am so glad you know where you stand now, after all this time, and what a relief you have found out before school starts (presumably, if your area is like ours, it starts next week?) You should now be entitled to all sorts of extras on the NHS, including a dietician, Dexa bone scans...
  16. cristiana
    Checks... you must be relieved! I'm so glad that the results are in, too. Yes, it would be so good, if you get a moment, to let us know what the results are when they are finally in. It's good to know that results can take this long to come through - I can update others in the same situation. I suspect Covid is to blame....
  17. cristiana
    Not DH, but I started having a terrible rash in my scalp which then escalated to my neck, shoulders, back etc. I was diagnosed with adult onset eczema. I found Neutrogena T-Gel absolutely brilliant and still use it as my main shampoo. For some reason my hair which is naturally curly but fine really responds well to it - just one shampoo and rinse, and...
  18. cristiana
    Hi Ella I'm afraid my knowledge of antibody types is very limited but I do recall my gastroenterologist told me one of my tests was strongly indicative of celiac, whereas the other (whatever it was!) was vague. I can only think the NHS would only put you through this if there were sufficient grounds to give you an endoscopy. I'm sorry it's so difficult...
  19. cristiana
    That's me you are describing there! I think the last time I vomited before going gluten free was when I was in my childhood or early teens even. I used to think how lucky I was that my symptom with anything gastric was D rather than V. Not now. After 8 years of being on the gluten-free diet, and being really strict about it, I ate a slice of...
  20. cristiana
    Thanks so much, it would be great to know how you got on. My own blood test results were off the chart, but I was still concerned that I had something else and it would be a normal biopsy! I don't think this is an unusual concern. I hope that you won't be kept waiting too long for your results. I think things might get a bit held up with the Covid catch...
  21. cristiana
    Hi Ella A friend of mine was told during the endoscopy that her gut was so damaged the doctor could see she had celiac disease. Now I've never heard anyone else say this - not even on the forum - so I don't know how typical this is? What I do know is she didn't have a sedative so perhaps this is the sort of conversation one might overhear the staff...
  22. cristiana
    Good for you! I definitely recommend that course of action if someone can tolerate it. In my own case chocolate Penguins and Weetabix beat two pieces of wholemeal bread a day hands down! (Mind you, make sure that the naughty food you have bought is packed with gluten!) Funnily enough I've just had to have a hospital appointment which I just couldn...
  23. cristiana
    Ellawells... thank you so much for the update. I've just read my first post to you was back in April. It's been quite a long wait for you but at least soon you will know for sure, one way or another. I hope it all goes well. Do come back to us when you have your results. As you are still eating normally, make sure you eat something you might miss if...
  24. cristiana
    Hi Trish It's so difficult isn't it with all these different reactions? Regarding a completely different foodstuff, I had not been able to have pure oats for some years. However, a few months back I ate some, I think from memory quite by mistake, and they didn't seem to cause any issues any more. So I started to eat them - probably too many! Eventually...
  25. cristiana
    Thank you so much for this advice. I hope to see a specialist next month as I am scheduled for a review. I am grateful to say that the horrible "shocking" pain seems to have subsided. I guess it could be a fissure or a haemorrhoid somewhere. However, apart from the possibility of pudendal neuralgia, I did have a very complicated labour with one...
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