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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Rykroeh Welcome to the forum. I hope someone will be able to help you with this, but in the meantime I have done a bit of reading about faint test results and I found this article which I think is helpful. https://flo.health/getting-pregnant/trying-to-conceive/pregnancy-tests/faint-line-pregnancy-test Sorry to not be of much help, but...
  2. cristiana
    Hi Checks I'm fine - I actually have a fantastic NHS gastroenterologist and as I have another health issue I thought it best to see him privately, which put me back about £90. Well worth it though otherwise I think I'd be really concerned (being a professional hypochondriac!) Cristiana
  3. cristiana
    Hi Checks I'm British and whilst I haven't had the same experience relating to a coeliac disease diagnosis (I was diagnosed in 2013) I have experienced a few other issues with the NHS since Covid started and yes, the poor NHS really is struggling in various areas, some more than others. For example, normally I get an annual NHS coeliac review including...
  4. cristiana
    Hi Nicole Welcome to the forum! Can I ask, have you discussed your symptoms yet with your midwife, GP, obstetrician or whoever is looking after you during your pregnancy? I think it is important that you touch base with your care provider when this sort of thing crops up in pregnancy. But in answer to your question, I was only diagnosed a...
  5. cristiana
    Hello again Aaron The journey of trying to track down food intolerances can be a long one. I think it is really good you are on your way to finding out if you are a coeliac or have NCGI because at least you will have one important answer, one way or another. (Although you are quite correcting in stating that the treatment for NCGI and coeliac disease...
  6. cristiana
    Hello Aaron, and welcome to the forum! People's responses can vary enormously. Depending on the gluten "hit", my own experience is my symptoms can vary from slight queasiness and a slightly sore stomach to extreme chills and being unable to stand up. I experienced the latter a few months ago when I ate a slice of cake that turned out to contain normal...
  7. cristiana
    Also... it is important to have been consuming enough gluten prior to an endoscopy for the same reason. Do keep this in mind before booking yours. You may wish to clarify this with your gastroenterologist.
  8. cristiana
    Hello there Aaron, and welcome to the forum! Well... it certainly sounds as if you have been experiencing a lot of celiac-type symptoms there but having read and re-read your account I am still not sure if you did what is known as a "gluten trial" before you had the blood tests. I'm from the UK and here it is usually recommended that someone needs to...
  9. cristiana
    Hello Casey and welcome to the forum! Trying to find out whether we have intolerances to various foodstuffs is quite a science. If you aren't already, I would suggest you might like to try keeping a food diary to record what you eat at each meal and as snacks and any symptoms the food triggers and see if a pattern emerges. But re: gluten...
  10. cristiana
    Thanks for posting those. I guess the difficulty which we face in this sort of situation is that is possible to have negative blood tests and still be a coeliac - either because one hasn't been consuming enough gluten to generate a sufficiently strong reaction, or despite gluten consumption, a small minority of coeliacs have negative blood tests but...
  11. cristiana
    Hello Lenzipam and welcome to the forum You are right in stating that 6 weeks seems to be the minimum recommended time period for the trial. Here in the UK it's usually recommended that one consumes at least two slices of glutenous bread per day through that period. Out of interest, were you totally gluten free before the trial? Also,...
  12. cristiana
    I'm not sure if the original poster has seen this. But with regard to B12 injections, I wasn't offered any by the doctor that diagnosed coeliac disease but my nutritionalist who saw my blood tests said she was surprised that I hadn't been offered them as my levels were only borderline normal. This is a useful thread from the National Health Service...
  13. cristiana
    Hi Trish I am in the UK and see these are for sale here, also marked gluten free (they look good!) I have never tried them but I just wanted to say to you that occasionally certain products are recalled because gluten sneaks in somehow. It can be worth contacting the manufacturer with the batch number and point out that you are having issues and...
  14. cristiana
    I'd really like to try this. I shall look out for it. However, I wonder if it would taste like or even "act" like Lyles as the only ingredient in Lyles is partially inverted refiners syrup which is made from either cane or beet sugar, and there is nothing else in it. I guess the message for flapjack purists would be to track down Lyles first, make...
  15. cristiana
    You are more than welcome, do feel free to come back to us if you need any further support. ☺️ Glad you had a better night's sleep.
  16. cristiana
    Hi Sue If you possibly can, I would agree with Scott and would encourage you to try to hang in there and consume gluten until the test. I think a couple of slices of normal bread a day or similar would normally be recommended, but as much as you can possibly can tolerate. There are benefits from having a formal coeliac diagnosis in the UK - you...
  17. cristiana
    This is very interesting. I didn't know oats and soya could aggravate DH.
  18. cristiana
    Yes... I googled an exact US alternative to golden syrup and several sites says there isn't one! However, I gather you can buy it in certain stores in the US. The brand you need for an authentic British flapjack is Lyles Golden Syrup. Sorry... going slightly off piste with this Oats thread!
  19. cristiana
    I reckon you are right there. One thing I ought to add is sometimes I think pain can be to do with the inablility to tolerate a certain sort of fibre content in the short term, while the gut is healing. I had the very same sore stomach when I ate lentils after diagnosis, so I had to give them up. I reintroduced them a few months after going...
  20. cristiana
    RMJ - thank you so much. I find the whole oat question so interesting. Strange thing is I had absolutely no pain eating oats until I adopted a gluten free diet, and ate them all day long those days .
  21. cristiana
    😊 RMJ - I wish I had your brain! Can you tell me, this T cell response etc, are they saying there was actual villous blunting as a result of consuming oats? It's late here in the UK and I'm reading this and finding all of this a bit complicated.
  22. cristiana
    Dave, this is something I would like to know as I've never been able to find this out. All I can say is about three months ago I found I could eat oats (pure, certified gluten free) again seemingly without pain and probably rather overdid it. Then, a month later, the burning stomach and neuro symptoms (muscle twitching) started up. There could of course...
  23. cristiana
    No problem at all. And thanks for sending that link - yes, it's funny you should send that as I vaguely recall a few threads on this website which mentioned tTg tests being affected by other autoimmune conditions. But as you think it is unlikely it is caused by these, it does sound as if coeliac may well be responsible. I hope the testing goes...
  24. cristiana
    Hi Hulia I think in your shoes - this is just my personal opinion and I should say I don't know anything about the reliability of home testing - I'd be inclined to get a blood test from a GP, as you will get to know how abnormal your test was. This can then be used as a benchmark to show how well you are recovering when you adopt a gluten free diet...
  25. cristiana
    Hi Hulia Do send that link, as trents says, it's fine for that kind of thing. But out of interest, where did you get tested for coeliac disease? Was it a test you sent off for or at your doctors' surgery? Cristiana
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