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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Corali It is of course common to have gastritis without having coeliac disease - a friend of mine has the exact same gastritis-like symptoms as me, but has been tested through biopsy as well as blood tests and does not have coeliac disease. She can go through periods of no pain at all, only for it to flare up again. In reply to your question...
  2. cristiana
    Hello Corali I get gastritis-type burning when I am glutened. Often, the only evidence I have of a mild glutening is a burning stomach. I find that taking 20mg of omeprazole or a similar OTC PPI just for a few days allows my stomach to settle down. I would never advise people to take this medication long term without consulting a doctor as it can...
  3. cristiana
    Just back from a wonderful holiday in Cornwall, in the West of England. Found the most delicious gluten free Cornish pasties in Martins Bakery Mevagissey, in the freezer where they offer pasties as well as other gluten-free treats. It was absolutely delicious. https://martinsbakerycornwall.com/
  4. cristiana
    Impending doom - that was me, too, in 2012, came straight out of the blue, couldn't understand why. Six month later my gastric symptoms started which led to my diagnosis. I found B12 supplements super helpful. Two books - At Last a LIfe by Paul David and The Six Step Depression Cure by Dr Steve Llardi were really helpful reads. Also meeting...
  5. cristiana
    You are more than welcome. Do come back to us if you need any support down the line, I hope the gluten challenge goes well.
  6. cristiana
    Ah... I'm sorry to hear about your experience. Things are a bit hit and miss with the poor old NHS at the moment. That said, my experience of the gastroenterology department in my local hospital has been excellent, sometimes better than the private sector, even since COVID, so you may be pleasantly surprised on this occasion - hope so! Unfortunately...
  7. cristiana
    Hello Sunny It is interesting to hear you are feeling the benefits of dropping gluten from your diet. This could point to your having non-coeliac gluten sensitivity, or coeliac disease itself. I am not sure where you are posting from, but in some countries there are real benefits in obtaining a formal diagnosis. For example, in the UK,...
  8. cristiana
    "... Provence, on the other hand... Hit the grocery while you can. Pack your food, have snacks and meals prepared. I lost a LOT of weight in just a week each time we were there (had to buy a belt at the market 😂)" Interesting.... my experience of rural Italy is the same. I was expecting great things but in rural Italy we found a restaurant th...
  9. cristiana
    Great article. Would definitely agree that it is important to travel with some gluten free snacks. However, I did find back in 2019 when we last visited France that somehow gluten was sneaking into my diet. We were there for about ten days, and about a month after our return I still had a sore stomach and my TTG levels were raised. I didn't eat...
  10. cristiana
    No problem, it can be very difficult to work out what is gluten related at first, and what might be another issue. If you want to be absolutely sure it isn't gluten, though, you will need to be quite ruthless in eliminating gluten from your diet. You will find some good advice here. Also, with your family history of coeliac disease you may...
  11. cristiana
    Hi Corie I used to get a tight feeling across my temples when I ate gluten, but it didn't last once I gave it up. I get pain over my left eye and pain in the eye socket sometimes, but I think it is because I'm not wearing glasses when I should. I also get pain at the base of my neck which also feels headachy, if that makes sense, which can be to...
  12. cristiana
    Hi @nattaliec I just wanted to clarify where you are posting from? We get posts from all over the world, it is not always easy to know. If you are posting from the UK, I'd like to add the NHS takes Coeliac Disease very seriously and this is why often they are very keen to do an endoscopy to rule it in/or out. With a formal diagnosis, depending...
  13. cristiana
    Glad you found it. Interesting about Europe. My private nutritionist would have been aware of that information, by the sounds of it.
  14. cristiana
    Hi again, I remember reading on this forum some years ago that in Japan anything under 500 for B12 is considered too low. I haven't got the time to find the post, but you may be more successful. Anyway, if this is right, I would say increasing your B12 is worth a try. I can't remember my readings on diagnosis but they were considered low normal...
  15. cristiana
    Hello and welcome to the forum Jeffguy I believe low vitamin K and anemia can both cause someone to bruise easily. When you say all your blood tests have been normal, are you well within the normal range for vitamin K, B12 and iron, or just on the cusp of what is within range? It could be that once your levels increase a bit you will find these symptoms...
  16. cristiana
    I couldn't agree more @Sabaarya. A low number like that, although just normal, could cause the fatigue and tingling. When my level was at 6 before diagnosis I had a lot more tingling, particularly in one leg. I have to keep my iron low because of a haemoglobin issue, so it hovers around 25 at the moment. However, for many years it was around 9...
  17. cristiana
    I still occasionally get tingling in my face, oddly enough I had it the other day. I was glutened in the past month, could be that. But I also think I have a type of neuralgia because it can follow on a day when I've had the car window down, or been in wind. A tingling face can also be a type of migraine. Tingling can also be caused by thyroid issues,...
  18. cristiana
    Quite a good post on the Coeliac UK website about theories why these issues occur. https://www.coeliac.org.uk/information-and-support/coeliac-disease/conditions-linked-to-coeliac-disease/infertility-and-coeliac-disease/
  19. cristiana
    That's great news. My MIL has some fantastic natural cures for everything. The problem is she's lived in so many countries I don't know where that particular remedy harks from, but I suspect it is Italian!
  20. cristiana
    Hi Mary You raise some valid points. I'm not a scientist but what I can tell you is that I was diagnosed with coeliac disease around the same time as a friend who had had several miscarriages,. It wasn't until she developed gastro symptoms that the doctor thought to check for coeliac disease. She has never had another miscarriage since adopting a...
  21. cristiana
    A young member of the family suffered from this and when visiting her grandmother in Italy she suggested the following traditional cure: teaspoons of blackcurrant jam, and a drink of hot water mixed with brown sugar. Surprisingly effective. Fresh cold orange juice is also useful.
  22. cristiana
    Great advice from @trents. Sorry for the late reply but living in the UK the different time zones get in the way sometimes! The family meeting is a great idea, as is supplementation. Take the best you can afford. I found vitamin B supplements a game-changer when I was first ill. Sublingual are best, but if they are too expensive for you I found...
  23. cristiana
    Hello there and welcome to the forum, I am so glad you have got in touch because a lot of us here will be able to identify with the fear and uncertainty you are currently going through. So many of the symptoms you list - ulcers, diarrhea, mucus, weight loss, abdominal pain etc are things that many of us have experienced before diagnosis, and it...
  24. cristiana
    Hello Julia and welcome to the forum! Continuing to lose weight after adopting a gluten free diet isn't uncommon. It certainly happened to me. I think I was 10 stone at diagnosis, and my weight got down to about 9 1/2 stone before it crept up again. My weight is now where it was before I got ill. Why does this happen? One reason is your...
  25. cristiana
    Hello Elisec4 I had bloating for some time after going gluten free, and from memory two things that really affected it were dairy and iron supplements. The dairy bloating seemed to affect my lower left quadrant and so I was told to try going lactose free for about three weeks. It definitely improved, but as we have a family history of osteoporosis...
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