Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cristiana

Moderators
 View Profile  See their activity

  • Posts

    1,891

  • Joined

  • Last visited

  • Days Won

    74

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    You are more than welcome. I think there are quite a lot of different types out there, my own nutritionist was a v. highly qualified scientist as well, but at least you can see what qualifications they are which seem to be quite well stated. I wish you all well on your son's coeliac journey. Cristiana
  2. cristiana
    Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link). For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a...
  3. cristiana
    @Gluten is bad Hi! I just caught this post, and am writing on the off-chance that you might be based in the UK. If so, I was told some years ago by a pharmacist that in the UK that if a medicine has a Product Licence printed on the packaging, which will appear as the letters PL plus a long number.... for example.... PL 4525908 (making that number...
  4. cristiana
    Hi @sh00148 I am so glad that your son is going to have a blood test next week. If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest. However, one thing you may wish to change...
  5. cristiana
    Thanks, @knitty kitty. I've been tested and don't have it, but there is certainly something odd going on. If I get indigestion that can set off palpitations, my sister has that too.
  6. cristiana
    Well, @mswhis I too have IBS, and I think bloating has a similar effect to constipation. Any changes that can lessen that internal pressure should help. Do you have pain in your sacroiliac region, or along the pudendal nerve? I have that. But it does seem to be a lot better now than it was several years ago when I first started the gluten-free diet.
  7. cristiana
    That's a shame, but on another tack - if you are coeliac with digestive issues, such as constipation, you may find that as they settle that might help somewhat. I've just had a quick read online and I see, for example, that constipation can exacerbate IC pain. https://www.healthline.com/health/constipation/interstitial-cystitis-and-constipation ...
  8. cristiana
    Hi @mswhis and welcome to the forum! I don't have IC but have suffered with standard cystitis on and off for years. I have found D Mannose helpful - have you tried it? I know that some IC sufferers have said that it has been beneficial to them.
  9. cristiana
    I remember reading about a passenger who was served the wrong food on a plane and reacted so badly to gluten they ended up having to sue the airline for the medical expenses incurred whilst in the States, where they were hospitalised on arrival. At the time my reaction to gluten was quite mild, and I couldn't understand how anyone could be that ill, but...
  10. cristiana
    At the time of the one awful, substantial glutening I experienced a few years ago, I felt very near to passing out. I think if I hadn't been able to lie down, I might have. As a child I was prone to fainting, and was told then how to avoid it, by putting my head between my knees, or lying down. So now, if I feel things going grey that is what I do and...
  11. cristiana
    In my case I the rash and marks that present tend to be AFTER I have been scratching the skin, not before. There are several varieties of eczema. . https://www.aad.org/public/diseases/eczema/types A few years ago, I was convinced my son had ringworm. He had marks all over his torso, and given we live near livestock, I assumed he'd picked...
  12. cristiana
    PS You asked about severe symptoms. Yes, I can tell you that the one and only time I have taken a really major gluten hit in recent times I had chills, sweats, vomited and thought I was going to pass out. I also felt my heartbeat was affected. I was really concerned at the severity of the reaction. And that was down to eating one piece of homemade...
  13. cristiana
    Hi @Louise Broughton Fellow Brit here! I am sorry to hear of your health issues. If I may chip in here, I think it might be worth your while at least having the blood test to see if you have raised antibodies. Whilst I agree under ideal circumstances people need to eat gluten for a period before both the blood test and endoscopy, it could well...
  14. cristiana
    @sh00148 Hello and welcome to the forum, I'm a coeliac based in the UK and I have only just spotted this thread. Reading your posts about PALs I imagine you are based in the UK too? I am so sorry for all your daughter has been going through but congratulations on your achievement on getting an appointment. I would definitely recommend you...
  15. cristiana
    One other thought: what other blood tests have you had? It might be worth having your iron and haemaglobin levels tested.
  16. cristiana
    @SoBannaz Have you ever been offered any sort of topical treatment for your skin? I occasionally have issues with my skin and during one of the lockdowns in the UK the itching was driving me up the wall - it was in my scalp, on my chest, shoulders, across the stomach. I was really stressed and worried about it. At his request, I sent a photo to...
  17. cristiana
    I think I'd give it a try, it does seem that it helps a lot of people. Do let us know if you want anymore advice, and how you get on.
  18. cristiana
    Hello @Bindi Welcome to the forum! I wonder if you have come across this post on the forum? Do have a read of it. I struggled for quite a long time with ongoing symptoms and I remember seeing a lot about the Fasano diet when I first joined the forum. I never actually adopted it, but it was on my 'to do' list had my issues continued longer...
  19. cristiana
    Hiya @sadiec123s. I am not sure this will be terribly helpful, but in case, I'll share a couple of things here. Rather than aggression, my mental health struggles were anxiety-related. I am sure there was a connection with my low B12 levels, and low iron, because once those were addressed I did start to feel better. Have you been checked for deficiencies...
  20. cristiana
    I had rib pain, but also hip and leg pain - google sacroiliac pain, it's common in coeliacs. SI joint pain affects the hip, buttock and thigh area. When I had it at its worst it was incredibly painful, a sort of burning sensation. If this is what your child is experiencing, she may find it helpful not to wear tight jeans or waistbands. Any pressure...
  21. cristiana
    Just repeating what my gastroenterologist was saying. Sorry - not a helpful post of mine, as I wasn't even sure what he meant!
  22. cristiana
    @matts Sorry - I didn't register the type of test. In the UK they routinely also do the tTG test too, so I wouldn't be surprised if it hasn't come back yet. For some reason, the tTg test can take quite a long time to come back from the lab ... maybe more than a week. I recall my total IgA wasn't convincing, but my tTG levels were through the roof...
  23. cristiana
    Hi @matts Yes.... it's a mystery to me why we are holding onto that 'o'. I expect it won't be there in 100 years! I think you are very wise to go back to your GP to chat through your options. If you would like to know one way or another, he or she may be happy for you to see a gastroenterologist through the NHS. If not, and you would...
  24. cristiana
    Hi @matts Welcome to the forum. I'm a coeliac living in the UK. I have a hunch you may be posting from the UK because of the way you spell 'coeliac.' Our American friends, quite sensibly in my opinion, drop the 'o'! Anyway, if so the UK, 'satisfactory' blood tests mean as follow: 'Satisfactory. Take no action - This means that the doctor...
  25. cristiana
    @trents @Vickey Matteson Trents makes a very interesting point. I did not have gastric symptoms initially but about six months before my diagnosis I had very odd liver function test results, iron deficiency and anxiety. I developed gastric symptoms just prior to my diagnosis - I honestly think that if I hadn't, my doctors would still be wondering what...
×
×
  • Create New...