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Rhotitar

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  1. Kind of late to this but my pain symptoms are like your right side pain under ribs that travels to my bag. Gets better when laying down. Hurts more when I breathe. My guess you are still getting gluten from accidental sources.
  2. Def gets worse it can also change even later. My co-worker who also has celiac since childhood yet she only started getting Dermatitis herpetiformis like 6 years ago.
  3. Not sure if you found relief but when I get glutened I drink lots of water mixed with glutamine it is an amino acid that normally you wouldn’t need, but in times of stress/injury it is depleted. It also plays a role in maintaining the integrity of the instestinal mucuosa. Anyway it works for me i...
  4. At first I thought it would be hard if not impossible to be vegan while also having to abstain from eating gluten due to celiac, but when I looked at online at my options I wasn't worried. If you can't/won't eat grains and legumes though I wouldn't recommend it. Right now my diet consists of Breakfast...
  5. Drinking glutamine helps me with reducing the time I spend with pain when I accidentally ingest gluten. That's the major symptom I get and it only lasts a few days. The other symptoms insomnia, migraines, constipation/runny bowl movements/mucus in stool only lasts about a day so can't comment on...
  6. I just had a very intense reaction to Kettle brand Backyard BBQ potato chips. Ugh it was awful very intense pain certainly feels like more than a slight cross-contamination judging by the amount of pain I am feeling. And it's the only thing I ate then 2 hours later bam hit me like a truck. The funny...
  7. Don't touch the stuff anything that has wheat grass, barley grass, oats, or hemp can't trust the product.
  8. I also get pain on my upper right abdominal area right under my ribs about 3 to 4 hours after ingesting gluten and lasting about 2 days if of course nothing else is ingested accidentally. The more gluten that is ingested the greater the pain of course at the highest level the pain travels from around...
  9. I definitely didn't feel any shock to my system. Not having pain 24/7 was a miracle it was like a new lease on life. Definitely cutting all consumption of gluten is the right thing otherwise your symptoms will not improve. It definitely was an adjustment for sure I had always eaten bread every morning...
  10. This post is ancient but I just had to comment I also get the most extreme pain when I ingest gluten even if it's a little bit more than a cross-contamination accident you can bet that's going to be a level 10 pain. At that point I just want to die or be put under general anesthesia. I don't think...
  11. My main symptom is right upper abdominal pain I can feel a reaction in about 3 or 4 hours. This might be a delayed reaction however as the pain is somewhat lessened by sitting or laying down. Who know maybe it happens earlier but I am usually sitting or laying down after eating. I asked someone at...
  12. I am not sure if it's new symptoms or I may just be more aware of it but I now know when I accidentally eat gluten I get migraines, insomnia, irritability, and fatigue in addition to my hallmark symptom of intense right uppper abdominal pain. Also someone I know who also has had celiac since she...
  13. Yes strawberries and mushrooms are sometimes cross-contaminated. Strawberries because they are grown on beds of wheat straw and mushrooms are grown on rye or other gluten grains. Here is an article explaining it on strawberries https://www.verywell.com/are-strawberries-gluten-free-562818 and mushrooms...
  14. Only thing that I feel is safe is some sushi at Chinese buffets I don't go to those places, but if I feel forced to because of a family event that's what I would eat.