Right Side Pain

[sdore]

Well this is for the women out there. I have been gluten free for 10 months (yeah). Two years before being diagnosed they took out my gall bladder, and I am still having right-side pain. Well last week I went under the knife and had a look at my ovaries because the Dr. swore there was a cyst or something. He found NOTHING??? My (girly) insides looked perfect as did my appendix. I still have a week until I go back and see him but it has been bugging me, it still hurts. Anyone else (by some slight chance) having or has had the same problem???And may know what it is??????

[Nadtorious]

I used to get this pain too, and still do if I have repeated reactions. The duodenum (first section of the intestine) is in the upper right hand side of the abdomen and this is the first part of the intestines to react to gluten. Could it be that? I know if I keep eating something wrong over a couple of weeks, I get super sore and swollen in my upper right corner of my tummy. Didn't put 2 and 2 together til I took anatomy and physiology!

Nadia

[sillyyak]

I had this pain for 4 months.. the docs told me they could not find anything wrong. I did my own research and have come to the conclusion that the pain was located inside my small intestine and was related to gluten ingestion. More specfically, that the pain was coming from the food not being able to be digested properly and was inadvertently "leaking" out from my small intestine in large molecules (leaky gut syndrome, which apparently can sometimes happen intensely if you have celiac).

A medical education is what I got from my 3 months of intense diagnostic workup.

[Nantzie]

A-ha! I get that upper right abdominal thing sometimes. Makes sense.

Nancy

[sdore]

Thanks for the support. It does make sense. I was just hoping I wasn't senstive to the other foods I eat. Living without gluten is hard enough. I will let you know what the Dr. says!

[sonjaf]

I too always had pain in that area, and since being gluten free, it went away. I also had a lot of gas too which was uncomfortable and made the pain worse.

sf

[4getgluten]

Interesting info. Before going gluten-free I had pain on my right side all the time. I only get it now when I've been glutened. It usually last a day or two.

[anerissara]

I had a pain in my upper right side (right below or behind the lowest rib) before I went gluten-free. My dr. said there is a sharp turn right there where gas can build up and he said sometimes intestines can blow up to the size of a soft ball (!) which could be causing the pain. In retrospect, that may have been part of it but I think it was a gluten reaction because after I went gluten-free it stopped. Now, I sometimes get a pain in the lower right side almost under the hip bone. That's the place where the small and large intestine connect and I have a feeling that it has something to do with that...it gets worse when I've been glutened and goes away sometimes for months at time.

[lonewolf]

Interesting. I've had the sharp pain in my right side too, along with gas, a lot in my life. I went for years when I had it every day. When I went wheat free it cleared up for the most part. It completely disappeared when I went totally, fanatically gluten-free, and hit me again a couple of weeks ago when I accidentally got "glutened". That was how I knew for SURE it was the gluten.

Liz

[Idrial]

I have this too! I was really concerned about it but feel much better after reading here. This always goes along with constipation, hemorrhoids and bleeding stools (dr. said celiac and lactose intolerance can both cause this) When I am completely gluten free, all that clears up.

[sdore]

Well I go to the Dr. tomorrow and I will let you all know what he says. Hopefully a little more insight. My pain really didn't come until after I went gluten-free, but it could be reoccuring because I am accidently taking in gluten somewhere and don't know it.

steph

[sdore]

Dr. said that my pain is from my colon not working properly. He put me on fiber supplements and I go back in 3 weeks...... I guess we will see.

[Moonlit Aries]

 I have had severe pain in my right side under my rib for two months now  and last week I had to go to the ER because it felt like an organ was about to explode! The pain was  excruciating  and got hot in my side and was getting pain also shooting up in my upper right chest and my low right back up to my shoulder blade and also my left hip!! I had a migraine for a week when i went to ER.. The ER doctors found nothing at all they said my blood work was fine count was fine nothing viral or bacterial and no infection.  They thought it was a kidney stone or a UTI or kidney infection and was none of that and they said all my internal organs look perfect. The ER doctor said could be something called porphyria, gluten allergy, something wrong with my GI, neurological and a list of other stuff but that's the main ones that he said I need to look into. I do have nerve damage in my arm and low back with my L3-5 herniated, the nurse when I was checking out said it could be my nerve damage getting worse and causing pain but still could be anything. IDK what's wrong with me!! Driving me nuts cause I have to see a specialist and I can't afford one and don't have insurance.. I have had so much go on in my life right now that I have to go to pantries for food so changing my diet is hard but seems like the days I didn't eat it i felt better.. But my whole life I have had migraines that make me puke and can't stand light or sound and don't know why. Thought maybe because my mom is the same way..But also for the last 10-15 years I can't gain much weight at all I'm always between 104-108 always constipated since I was a kid ( rabbit turds mostly lol sorry) was diagnosed when I was a child bipolar and manic depressive and I have been with my husband almost 15 years and still have not been able to get pregnant.. I was reading on symptoms and celiac disease or gluten sensitive/allergic (my friend told my gluten sensitivity is a myth it's either celiac or not at all idk) is all those for a lot of people but my symptoms could be anything!! ..  Please any advice would be great thank you! 

[ironictruth]

Just a FYI, you posted in a post that is over 10 years old. 

So sorry about your suffering. Ugh. How awful. I get right sided pain as well and did all of the scans too. It is scary when you do not know what is wrong. 

Try to see a doctor to run the complete celiac panel: ttg, dgp, ema and overall iga. Look them up and insist they all get done. Some docs fail to order the whole panel. It is especially important in your case they do are efficient in testing because of your financial situation.

Keep us posted. Where do you live btw? Every now and then certain places run free screenings. Maybe we could find one for you. 

 

[Jmg]

6 hours ago, Moonlit Aries said:

Please any advice would be great thank you! 

Hello and welcome

You've replied to an old thread, it may be better if you could repost as a new thread in this section: https://www.celiac.com/forums/forum/13-celiac-disease-pre-diagnosis-testing-amp-symptoms/ as more people will see it! Maybe a mod will move it (hint hint!)

6 hours ago, Moonlit Aries said:

 The ER doctors found nothing at all they said my blood work was fine count was fine nothing viral or bacterial and no infection.

They're unlikely to have ran a celiac blood test. That's what you need in my view. Your regular doctor should be able to order it. 

6 hours ago, Moonlit Aries said:

I have to see a specialist and I can't afford one and don't have insurance..

I'm sorry. US healthcare system is baffling to me sometimes.   Perhaps some of the US members can advise if there's any help available for you.

You have the option of trialling the gluten free diet to see if it helps with symptoms. Of course as the ER doctor said there are other potential causes, but removing gluten won't harm you as long as you eat a balanced diet. That's the only treatment for celiac in any case so at least you can try this without incurring more bills.

6 hours ago, Moonlit Aries said:

(my friend told my gluten sensitivity is a myth it's either celiac or not at all idk) 

There's lots of arguments about it but I can tell you from personal experience that some people that test negative have issues with gluten. 

I'll add a couple of links below to further info on testing. But if you want to go gluten free check this topic out, it's a little difficult at first because gluten is in so many processed foods, but if you stick to fresh produce, rice, corn etc its possible to eat well and healthily. Just watch for hidden sources. 

https://www.celiac.com/forums/topic/115138-suggestion-faq-intro-post-for-the-diagnosis-board-input-requested/?do=findComment&comment=970127

https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/

Best of luck, hope you find some answers and feel better soon!

 

[rehh05]

Right side pain under the rib can also be gall bladder. I had problems with that before finding out about my celiac and thyroid issues. It can be extremely painful. 

[June O]

I have been having pain in my right side too. Comes and goes with gas. Got tested...bloods and such. Was told I have gerd. So when I east I need to be gluten free and watch acidic foods as well. Some days are better than others. The good news is that off gluten my tiredness has gotten less and my energy level is up. I was diagnosed with celiac. Unfortunately I was put back on gluten foods right after I got better. As a result, I've had stomach problems, IBS, Migraines, am short, thinning hair etc. I finally reached out to this organization and took action to get better.

Hope this right side subsides too. Love to hear others' about this

June

[Rhotitar]

I also get pain on my upper right abdominal area right under my ribs about 3 to 4 hours after ingesting gluten and lasting about 2 days if of course nothing else is ingested accidentally. The more gluten that is ingested the greater the pain of course at the highest level the pain travels from around my rib and to around my back. Breathing actually makes it hurt more at this level. The only thing that relieves the pain somewhat is laying down or sitting down. 

[Ennis-TX]

3 hours ago, Rhotitar said:

I also get pain on my upper right abdominal area right under my ribs about 3 to 4 hours after ingesting gluten and lasting about 2 days if of course nothing else is ingested accidentally. The more gluten that is ingested the greater the pain of course at the highest level the pain travels from around my rib and to around my back. Breathing actually makes it hurt more at this level. The only thing that relieves the pain somewhat is laying down or sitting down. 

Yep, that is my marker at the 6-24 hours mark after exposure, I get it from a few others foods also, something about right there no clue what. But laying down and massaging it helps, along with if I can power through them crutches and jumping jacks....it feels like something is stuck there. Might be in my head but doing these makes it gurgle and seem to move on faster. >.> might just be the endorphins from more pain and working out lol.

[Karlae86]

Wanted to say Thank you I had my gallbladder removed a year ago and experience the same right side pain. Thanks Again 

Karla E. 

[MrsCoeliac]

Hello! I know this thread is old but I just wanted to add for anyone who looks at threads like this while waiting for tests etc like I did! I have just been diagnosed as coeliac and had a lot of right sided lower abdo pain! My colonoscopy was fine and all the pain is associated with being coeliac. Hope that might be reassuring! Hope everyone is staying well 🙂

[Addy86]

On 5/31/2017 at 9:44 AM, Moonlit Aries said:

 I have had severe pain in my right side under my rib for two months now  and last week I had to go to the ER because it felt like an organ was about to explode! The pain was  excruciating  and got hot in my side and was getting pain also shooting up in my upper right chest and my low right back up to my shoulder blade and also my left hip!! I had a migraine for a week when i went to ER.. The ER doctors found nothing at all they said my blood work was fine count was fine nothing viral or bacterial and no infection.  They thought it was a kidney stone or a UTI or kidney infection and was none of that and they said all my internal organs look perfect. The ER doctor said could be something called porphyria, gluten allergy, something wrong with my GI, neurological and a list of other stuff but that's the main ones that he said I need to look into. I do have nerve damage in my arm and low back with my L3-5 herniated, the nurse when I was checking out said it could be my nerve damage getting worse and causing pain but still could be anything. IDK what's wrong with me!! Driving me nuts cause I have to see a specialist and I can't afford one and don't have insurance.. I have had so much go on in my life right now that I have to go to pantries for food so changing my diet is hard but seems like the days I didn't eat it i felt better.. But my whole life I have had migraines that make me puke and can't stand light or sound and don't know why. Thought maybe because my mom is the same way..But also for the last 10-15 years I can't gain much weight at all I'm always between 104-108 always constipated since I was a kid ( rabbit turds mostly lol sorry) was diagnosed when I was a child bipolar and manic depressive and I have been with my husband almost 15 years and still have not been able to get pregnant.. I was reading on symptoms and celiac disease or gluten sensitive/allergic (my friend told my gluten sensitivity is a myth it's either celiac or not at all idk) is all those for a lot of people but my symptoms could be anything!! ..  Please any advice would be great thank you! 

Hey hope you are doing fine. I have the same symptoms. Can you share your experience. What are you diagnosed with ?. What tests should I get done ?