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Interesting Question During Colonoscopy


luvs2eat

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luvs2eat Collaborator

So... I had my second colonoscopy yesterday. My first was 10 years ago when I was diagnosed with celiac by bloodwork and my GI doc said that I was close enough to the beginning screening age.

This time, when I told one of the nurses asking about past medical history that I was a biopsy-proven celiac (by bloodwork and an endoscopy a few years later) and that all three of my daughters had been diagnosed in the last 10 years, the only question she asked was, "Do you eat out in restaurants?"

When I met w/ the doctor who asked me if there were any GI illnesses or cancer in my family and I told him of my celiac history, he asked, "Do you eat out in restaurants?"

It wasn't until later than I thought the question from two different people interesting and wish I'd thought to ask why they asked that particular one?

I told them both, "Nope, we don't eat out anymore. It's just too hard and we've found it's just not worth it."

We don't live near a PF Changs and almost EVERY place we've been to in our very tiny rural town has gotten something so wrong I've had to send my food back... so we just don't go.


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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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