Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

  • Record is Archived

    This article is now archived and is closed to further replies.

    Scott Adams
    Scott Adams

    By Scott Adams •

    Congress Hears First Ever Testimony on Celiac Disease

    Reviewed and edited by a celiac disease expert.

    Celiac.com 05/25/2004 - On April 27, 2004, for the first time, individuals with Celiac Disease testified before a Congressional Committee.

    Celiac.com Sponsor (A12):
    Lisa Murphy, and her son, Colin, represented the ACTF before the House Appropriations Subcommittee on Labor, HHS, and Education. They did an outstanding job outlining what celiac disease is, who it affects, the need for NIDDK to develop a research plan for celiac disease, as well as the need for greater physician and patient education (The Murphy family, of Chappaqua, NY, was featured in a Feb. 2004 Parents magazine article about celiac disease).

    The Labor-HHS Subcommittee determines how much money NIH receives each year. Having individuals with Celiac Disease provide information about the disease is critical to securing funding for research.

    After hearing the testimony, Subcommittee Chairman, Ralph Regula (R-OH), asked if food labels were a problem for celiacs. Not missing a beat, Lisa offered an emphatic, Yes, then highlighted problems she has encountered. Rep. Nita Lowey (D-NY), sponsor of H.R. 3684, the Food Allergen Labeling and Consumer Protection Act, and member of the Subcommittee, explained the bill was drafted to help individuals like Lisa, and Colin.

    The celiac community has waited a very long time for this incredible opportunity.

    The American Celiac Task Force is grateful to the entire Murphy family for graciously agreeing toshare their story, and for helping to make this historic day possible.

    Allison Herwitt
    Co-Chair, Legislative Project
    American Celiac Task Force


     Share
    Go to articles

    User Feedback

    Recommended Comments

    Guest Karen Winslow

    Guest Karen Winslow

    Posted

    Hi Scott...do we have any info on when this bill (Rep. Nita Lowey (D-NY), sponsor of H.R. 3684, the Food Allergen Labeling and Consumer Protection Act) will come up for a vote? We should all become active and contact our Congressional Representatives to vote positively on this bill. Other than your great site, we need to work at getting the word out in the mainstream as well.

    Link to comment
    Share on other sites


    Guest
    This is now closed for further comments

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • About Me

    Scott Adams

    Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives.  He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Related Articles

    Scott Adams
    (Celiac.com 03/17/2000) Under the new FDA rules (effective in 2000), consumers will get more information about the sources of protein hydrolysates in their food. Hydrolyzed proteins are added to foods to serve various functions, including thickeners, flavorings and flavor enhancers, and they pose a major problem for people on special diets. From now on food makers will have to declare the source of added hydrolyzed proteins. The new laws state that the source of all protein hydrolysates--regardless of use--will now have to be identified. Further, caseinate will have to be identified as a milk derivative in the ingredient statement when its used in foods that claim to be non-dairy. According to the FDA these new requirements will help people who have special diet restrictions....
    Scott Adams
    Celiac.com 09/01/2005 - The Gluten Intolerance Group® is pleased to announce our gluten-free food certification program, the Gluten Free Certification Organization (GFCO), the first program of its kind in the world! This new independent food processing inspection program will verify that food products meet the highest standards for gluten-free ingredients and a safe processing environment. Food products meeting these high standards will receive our gluten-free certification mark, allowing gluten-free consumers to easily identify foods that are free of gluten and possible cross-contamination from gluten.
    Key elements of the GFCO process include:
    Ingredients review, down to the original supplier Onsite inspections by experienced, trained independent (third party...
    Scott Adams
    Celiac.com 12/27/2005 - Enjoy Life Natural Foods will begin displaying the GFCO certification mark on all 17 of their products beginning in December 2005. Enjoy Life has a strong commitment to the celiac community. We hear from consumers everyday, expressing how much difficulty they have identifying foods that are safe for their gluten-free diet, said Scott Mandell, President and CEO of Enjoy Life Natural Brands. We are proud to be able to provide them with the extra convenience and safety assurance this new certification provides. Look for more information about Enjoy Life Natural products and recipes using these
    products at Open Original Shared Link and Open Original Shared Link.
    Gluten-Free Certification Is HOT! The food industry is buzzing about gluten-free and GFCO...
    Jefferson Adams
    Pharmacists Play Key Role in Educating Patients about Gluten in Drugs and Medicines
    Celiac.com 05/12/2015 - The current treatment for celiac disease is the avoidance of gluten-containing foods, beverages, and other products by means of a strict gluten-free diet.
    Following such a diet can be challenging, but recent FDA labeling rules go a long way toward helping people with celiac disease know with pretty good certainty whether a food product contains gluten, or is gluten-free.
    However, When it comes to prescription drugs, medicines, OTC products, supplements, and vitamins, people with celiac disease currently have little guidance. The FDA rules that mandate the labeling of gluten and other known allergens on food product labels does not apply beyond food. There are currently no rules mandating the labeling of gluten in drugs and medicines. That means that...

  • Recent Activity

    1. RMJ
      - RMJ replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      A year and a half of test confusion...

      Have you considered eating plenty of gluten from now until your capsule endoscopy? If you truly have celiac disease that would increase the chances of damage being seen.
    2. trents
      - trents replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      A year and a half of test confusion...

      I just want to reinforce what Scott said and that is we have tended to think in these neat little black and white categories of it's either celiac or NCGS when in reality it may not be quite that neat. There's just a lot we don't know and the immune system is very complex. I often wonder if I had been gluten free as a child if I would have avoided developing...
    3. JA917
      - JA917 replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      A year and a half of test confusion...

      I am actually in the middle of this article currently already! Thank you. This website is extraordinarily helpful.
    4. Scott Adams
      - Scott Adams replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      A year and a half of test confusion...

      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
    5. JA917
      - JA917 replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      A year and a half of test confusion...

      Gotcha. I'll give 100% gluten-free a whirl after my testing concludes. I know the traditional endoscopy is the gold standard, but I've already had that done and it was normal, so my gastro wants to do a capsule endo to try to cover more surface area and see if she can see anything further than the traditional endo... If I do have Celiac, I just seem to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,482
    • Most Online (within 30 mins)
      7,748
    pousson
    Newest Member
    pousson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Popular Now

    • JA917
      10
      A year and a half of test confusion...

      By JA917
      Started

    • marion wheaton
      6
      Osteoporosis

      By marion wheaton
      Started

    • Jula
      6
      Preliminary diagnoses via blood test in 2009; Is biopsy confirmation worth the contamination required?

      By Jula
      Started

    • GardeningForHealth
      88
      10 years later, my celiac is progressing

      By GardeningForHealth
      Started

  • Popular Articles

    • Scott Adams
      60
      The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free

      By Scott Adams

    • Scott Adams
      78
      Forbidden Gluten Food List (Unsafe Ingredients)

      By Scott Adams

    • Scott Adams
      66
      Safe Gluten-Free Food List (Safe Ingredients)

      By Scott Adams

    • Scott Adams
      144
      What Are the Symptoms of Celiac Disease?

      By Scott Adams

    • Scott Adams
      72
      Gluten-Free Alcoholic Beverages

      By Scott Adams

  • Upcoming Events

×
×
  • Create New...