Experts Recommend Celiac and Gluten Sensitivity Screens for Small Fiber Neuropathy Patients

So what if we know we have this condition?  What can be done for the pain and numbness and loss of balance?

On 9/2/2019 at 7:05 AM, Guest DQM said:

So what if we know we have this condition?  What can be done for the pain and numbness and loss of balance?

Some people try physical therapy or acupuncture to see if it will help. Also many members on the forums suggest to ensure (especially if newly diagnosed to check for nutrient deficiencies.)

I personally have to watch all the b vitamins, especially b-12 (sublingual best) vitamin d, magnesium, and zinc in the event gluten cc exposure occurs I often times will need to supplement while healing as I don't absorb them properly.

Good luck 

10 yrs before dx of Celiac, I was diagnosed with Raynaud's after the doctor noticed my red hands, wrists and lower arm. After 6 mos on gluten-free diet, I went to pick up a pan off the stove as I always had (without a pot holder).  It felt so hot and instantly reminded me of a sensation of hot when I was a child. As I had grown into an adult, my mother said (who had the same skill) said that you become less sensitive as an adult, is all.  I also had ice cold feet that would often be close to purple in color in the winter. If it was hot, both hands and feet got too hot, so cool water was the solution. Not any more.  But, the foot issue was the longest healing- took another ten years to have warm feet when I wake up.  (I have- or was doing a lot of detoxing things- the last part was iodine supplement which may be part of this latest rejuvination. 

At nine months in on the gluten free diet I got back my sense of touch- I went around the house feeling all the different textures of fabric, etc.  It was amazing to have my 43 y.o. hands feel young again.  Right away I looked up the connection to Raynaud's on a forum and found out it was not coincidental at all.  When the doctor dx'd me with Raynaud's he was treating me for a Vitamin D defiency--a renowned Vit D specialist at that-- never did he test for gluten and he overdosed me eventually with 100,000 IU weekly of Drisdol.  My symptom was having bone pain--I was thin despite eating, sick all the time--and had been on a vegetarian diet, using whole wheat to replace the meat protein. My diagnosis for the D problem was a long time in coming, because I have a bone disease--but I even told doctors and family that I often I felt better if I just didn't eat!

Neuropathy and pain as Celiac Symptoms should be stressed as part of the diagnostic criterea.  One reason is, that until I went gluten free, I thought my GI problems were normal so when asked, if I wasn't having extreme problem, like gushing water or something, I would say "No, that is fine."  I couldn't believe the first week--and onward on the diet what normal really was. I'd considered my GI--BM the most normal of my immediate family as a child. Two other factors that didn't get diagnosed correctly or at all, were adult acne and bouts of depression or emotional behavior. In a week my skin stopped breaking out. And, in a month it felt like I had taken my brain out of a plastic bag- I could think without having to focus so much and I felt alive and happy to the point that I would not go back on gluten to have my intentine biopsied.