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    Jefferson Adams
    Jefferson Adams

    By Jefferson Adams •

    New Medical Language Makes Gluten-Sensitivity and Celiac Disease Separate Disorders

    Reviewed and edited by a celiac disease expert.

    Celiac.com 03/16/2012 - It's official! After an international conference to address gluten-sensitivity, fifteen experts from seven countries have announced the development of a nomenclature and classification system making gluten-sensitivity a distinct and separate condition from celiac disease.

    New Medical Language Makes Gluten-Sensitivity and Celiac Disease Separate DisordersTheir work on establishing universal medical terms for gluten-sensitivity may serve as a guide to improve the diagnosis and treatment of gluten-related disorders. The experts have published their conclusions and recommendations in "Open Original Shared Link," which includes a diagnostic roadmap for clinicians. The new consensus appears in the journal BMC Medicine.

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    The conference was co-chaired by Alessio Fasano, M.D., professor of pediatrics, medicine and physiology and director of the University of Maryland Center for Celiac Research (CFCR) at the University of Maryland School of Medicine, along with Carlo Catassi, M.D., M.P.H., co-director of CFCR and professor of pediatrics at the Universita Politecnica delle Marche in Ancona, Italy, and Anna Sapone, M.D., Ph.D., of the Seconda Universita of Naples.

    Gluten sensitivity, a condition causing gastrointestinal distress and other clinical symptoms, has been identified by the international panel of experts as a distinct entity on the spectrum of gluten-related disorders that includes wheat allergy and celiac disease.

    “For the first time," says Dr. Catassi, "we have provided an accurate diagnostic procedure for gluten sensitivity. We have confirmed that to correctly diagnose gluten sensitivity, we need to exclude celiac disease and wheat allergy with the appropriate diagnostic tests.”

    Whereas about 1 in a hundred or so people has celiac disease, Dr. Fassano estimates about "60 to 70 percent" of the people coming to his clinic for treatment actually suffer from gluten sensitivity.

    Overall, an estimated six percent of people of European descent may be affected by gluten sensitivity, which would make it of the most common pathologies in the world today.


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    Guest Minnie

    Guest Minnie

    Posted

    Very interesting. In order to be diagnosed with non celiac gluten sensitivity, a person has to have negative antibodies, no villi damage, no malabsorption, no gut permeability, but 45 million dollars buys a diagnosis. I've lost all respect for Dr. Fasano.

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    Guest vivienne harris

    Guest vivienne harris

    Posted

    Glad to hear about this, but I need more information on testing to find out about this kind of problem.

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    Guest Kathy Glynn

    Guest Kathy Glynn

    Posted

    I would like to know more than what this article provided. I would like to know where I fall on the continuum. I have the antibody information provided on the blood test.

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    Guest Phillip Fine

    Guest Phillip Fine

    Posted

    Very interesting. I agree with Kathy and Vivienne above. Also, someone please tell me - why on earth isn't big pharma looking for some kind of remedy? The change of eating lifestyle is a huge inconvenience, and the market of people who would pay for a fix to be able to eat what they want again is HUGE. Isn't that worthy of big pharma research?

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    Guest Peggy B.

    Guest Peggy B.

    Posted

    Very interesting. I agree with Kathy and Vivienne above. Also, someone please tell me - why on earth isn't big pharma looking for some kind of remedy? The change of eating lifestyle is a huge inconvenience, and the market of people who would pay for a fix to be able to eat what they want again is HUGE. Isn't that worthy of big pharma research?

    So much less of an inconvenience that in years past! I would much rather ELIMINATE items from my plate than have a pharmaceutical company create ''medication".

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    Guest Lynn_M

    Guest Lynn_M

    Posted

    As someone with non-celiac gluten sensitivity as confirmed by genome testing, I welcome this development. Currently, I do not fit in a recognized diagnostic category, and in this day and age of everything having a code attached to it, this impairs recognition of the precautions that need to be taken and treatment provided.

     

    I wonder what the criteria will be for classifying patients as gluten sensitive.

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  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     

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