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  • Jefferson Adams
    Jefferson Adams

    Schär's Self-Diagnosing Online Test for Celiac Disease Stirs Controversy

    Reviewed and edited by a celiac disease expert.

    Schär company draws fire for offering a self-diagnosing celiac disease test on their company website.

    Schär's Self-Diagnosing Online Test for Celiac Disease Stirs Controversy - Schar web site on 07/25/2023. Image: Scott Adams
    Caption: Schar web site on 07/25/2023. Image: Scott Adams

    Celiac 08/01/2023 - The Schär company is known for making a wide range of popular gluten-free foods, including gluten-free pastas and breads.

    However, a test the company is offering, for self-diagnosing celiac disease, has come under scrutiny for potentially promoting misdiagnosis of people with the condition. The test, available online on the company’s website, has raised concerns over its accuracy, and the growing trend of promoting self-diagnosis of celiac and other diseases.

    Celiac.com Sponsor (A12):
    Celiac disease is a serious autoimmune condition triggered by gluten consumption. Many cases of celiac disease go undiagnosed, leading to individuals ignoring, or dismissing their symptoms. Early detection is now possible, but self-diagnosis has become a growing trend.

    Schär Questionnaire About Gluten Consumption & Symptoms

    To deliver results, the Schär test asks individuals questions about their gluten consumption and symptoms. While not intended to replace professional diagnosis, the test suggests potential gluten intolerance based on common symptoms like fatigue or headaches. Critics argue that the test may overstate celiac disease risk, even for minor symptoms.

    In a test trial, an individual without any gluten intolerance symptoms took the Schär test. Although it did not detect any potential celiac disease, the individual still sought medical advice due to the questionnaire's prompting.

    This raises concerns about the test's accuracy and reliability, as well as the growing self-diagnosis trend. Medical professionals emphasize the importance of consulting doctors for proper diagnosis, warning against relying solely on online tests.

    Celiac disease is complex and requires thorough evaluation by medical professionals to avoid unnecessary dietary restrictions and health risks. Seeking professional medical advice is crucial for an accurate diagnosis and proper management of the condition.

    Read more at breakinglatest.news



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    Guest Mary E Ficzere

    Posted

     Its still a good idea to take the test, and if concerned, check with their doctor for further testing/ follow up. Could encourage more folks to get evaluated- to see if they have celiac.

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    Celiac comments

    I had 2 different celiac tests from the same blood draw. One negative and one positive. Test again is if it seems warranted. I was really sick for 2 years, and unwell before that. I keep thinking what if I had only had the one test that was negative. I felt much better in 3 days of being gluten free, but years for the dermatitis hepataphoris, I know I misspelled that, if moderator can correct, to clear up.  

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    anastunya

    Since so many American internists, including adult gastroenterologists, are still gaslighting patients with gluten intolerance, I would follow the advice of pediatric gastroenterologists to go on a gluten free diet for at least six weeks to see if certain symptoms improve. After a few months of feeling better, reintroduce the gluten to see if it makes you ill. I recently had a negative blood test after two weeks of suffering on gluten. I had been off of it seven years. I will not return to suffering because some corrupt system internist making $$$$ “managing” GI disease tells me it’s all in my head! I had to “find the cure” for my GERD and IBD myself. 
    And thanks Schar for the tasty breads! 

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    anastunya

    Oops! I spelt Schär wrong! Please correct.

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    trents
    3 hours ago, anastunya said:

    Since so many American internists, including adult gastroenterologists, are still gaslighting patients with gluten intolerance, I would follow the advice of pediatric gastroenterologists to go on a gluten free diet for at least six weeks to see if certain symptoms improve. After a few months of feeling better, reintroduce the gluten to see if it makes you ill. I recently had a negative blood test after two weeks of suffering on gluten. I had been off of it seven years. I will not return to suffering because some corrupt system internist making $$$$ “managing” GI disease tells me it’s all in my head! I had to “find the cure” for my GERD and IBD myself. 
    And thanks Schlar for the tasty breads! 

    Two weeks back on gluten would not likely raise antibody levels to give positives. The Mayo Clinic recommends the daily consumption of two slices of wheat bread (or the gluten equivalent) for at least 6 weeks before blood testing for celiac disease.

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    Catastrophe

    I asked my husband's gastroenterologist about testing for gluten intolerance.  He said that if a gluten-free diet was working for a patient, he wouldn't ask them to go through weeks of misery just to be able to test them for gluten intolerance.  Sensible man.

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    trents
    36 minutes ago, Catastrophe said:

    I asked my husband's gastroenterologist about testing for gluten intolerance.  He said that if a gluten-free diet was working for a patient, he wouldn't ask them to go through weeks of misery just to be able to test them for gluten intolerance.  Sensible man.

    I tend to agree. At the end of the day both conditions require absinence from gluten anyway.

    Edited by trents
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    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

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