Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Sesame Allergy


jmrogers31

Recommended Posts

jmrogers31 Contributor

I posted about a week ago that I had an exercise induced anaphalaxis reaction while jogging and had to be rushed to the ER.  I had allergy testing done on Monday and while they found I was allergic to a lot of molds, trees, weeds, and grasses which I knew already and knew they gave me asthma and not an anaphalaxis reaction.  I also found out I am highly allergic to sesame and the sesame oil in my food that night caused the reaction I had.  So, I was out of town yesterday for a funeral and I haven't had any time to look into eating sesame free yet and my daughter gave me a handful of trail mix.  I took a handful and my tongue swelled up, my mouth itched, and I had hives on my arm.  Read the back and yep, sesame seeds.  So, it looks like I will be doing some research today to get a sesame free list.  I know that celiac will not show up on a skin test because it's an auto immune response, but wheat also showed up as an allergy.  The allergist wondered if my being allergic to pretty much all types of grasses made my body react to wheat the way it does.  I thought it was interesting as someone who isn't diagnosed celiac to look at wheat as just another type of grass my body is reacting to. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I have a friend that is severly allergic (with anaphalaxsis).  It is a tricky one.  There is sesame in a lot of surprising places.  Makes restaurants hard.  Good luck!

flowerqueen Community Regular

I posted about a week ago that I had an exercise induced anaphalaxis reaction while jogging and had to be rushed to the ER.  I had allergy testing done on Monday and while they found I was allergic to a lot of molds, trees, weeds, and grasses which I knew already and knew they gave me asthma and not an anaphalaxis reaction.  I also found out I am highly allergic to sesame and the sesame oil in my food that night caused the reaction I had.  So, I was out of town yesterday for a funeral and I haven't had any time to look into eating sesame free yet and my daughter gave me a handful of trail mix.  I took a handful and my tongue swelled up, my mouth itched, and I had hives on my arm.  Read the back and yep, sesame seeds.  So, it looks like I will be doing some research today to get a sesame free list.  I know that celiac will not show up on a skin test because it's an auto immune response, but wheat also showed up as an allergy.  The allergist wondered if my being allergic to pretty much all types of grasses made my body react to wheat the way it does.  I thought it was interesting as someone who isn't diagnosed celiac to look at wheat as just another type of grass my body is reacting to. 

First of all, I'm really pleased that your reaction last week was not anaphylaxis, although asthma is quite horrid.  I am a little concerned about your reaction to the sesame seeds yesterday though and think perhaps you should get that investigated as next time your symptoms could be worse.  - Sorry, I don't want to alarm you, and I hope I'm wrong.  Perhaps someone else reading this could give you more advice? Please be careful and good luck with it all and let us all know how you get on. :unsure:

shadowicewolf Proficient

You can be both allergic to wheat and have celiac at the same time :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    2. - knitty kitty replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    3. - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      11

      No red meat

    4. - yellowstone posted a topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,002
    • Most Online (within 30 mins)
      10,442

    Boikanyo William Mompati
    Newest Member
    Boikanyo William Mompati
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
    • glucel
      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
×
×
  • Create New...