Trying To Figure Out Whats Going On With My 4Yr Daughter

[Lena378]

My daughter was displaying some random symptoms including:

      Pretty severe eczema (mostly appearing after during her bath)

      Eczema on her bottom. Almost like a diaper rash (really bad at times)

      Eczema around her mouth

      Only has small bowel movements

       Stool occasional turns light tan

       Pain "in her belly button"

 

So we tested her with her regular doctor doc who found nothing.

 

Brought her to see a pediatric GI and he examined her and says she looks generally very healthy. Runs another blood panel and it comes back with celiac disease.

Now I know nothing and here's where im hoping for some help.

 

He said she tested positive for 4 out of 4 of the markers?? And that her levels were at 76?

He claims he is 93% positive that she has celiac disease but she does not display classic symptoms.

So today we took her for the endoscopy, she followed all the pre orders only eating lite little amount of food and clear liquids.

When the did the scope they couldn't get into her stomach because it was full, so needless to say it was inconclusive.

So now what does it mean that she is taking forever to digest food? Her last heavy meal was probably breakfast the day before and she is not a "big" eater.

 

Of course the GI doc says we can talk about a diet tomorrow but that leaves us hanging all night on what to think? Could she really have celiac disease? She is normal height (maybe taller) healthy weight...

 

I am so confused and would love and feed back anyone way have

 

 

Thanks

[powerofpositivethinking]

welcome 

 

you've come to the right place for questions and support!  from what I gather, you have your follow-up tomorrow, so that is great!  Please get a copy of ALL test results, and then if you'd like specific help, feel free to post them here.  I'm going to guess that the test your daughter had run was the ttg iga.  

 

a comprehensive celiac panel consists of:

dgp iga/igg

ttg iga/igg

EMA

total iga serum-this is a control test to make sure your daughter makes enough iga antibodies to validate the other iga results

*take this list and make sure these were all run on your daughter

 

has your daughter been checked for any nutritional deficiencies?  

 

check out pg. 12 of this report Open Original Shared Link

iga ttg has a 91-99% specificity for celiac disease.  also take a look at p. 7 and non-classical symptoms at the top

 

DGP igg seems to be very good at picking up celiac disease in children.  these two abstracts will give you a little more insight:

Open Original Shared Link
Open Original Shared Link

 

I'm happy your GI was proactive and screened for it even though your daughter doesn't display the classic signs.  hopefully things will get on the right track since you're starting to get some answers 

 

edited *does your daughter's eczema look like this Open Original Shared Link ??

if your daughter has celiac, which it looks like there is a very strong chance she does, this is a great place to be.  it can be a lot at once, but we'll help you through