Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Celiac Friend In Uniontown, Pa Area

niese

By niese
in Meet Up Room

Recommended Posts

niese Explorer
niese
Posted

Hi about month ago diagnose with Celiac and I am looking for friend with Celiac in the Uniontown, PA area.  I am 47 yrs old married Christian woman.  My husband is an awesome support system but he doesn't understand everything I deal with.  At times I feel I'm along in the corner.  Praying to meet others with this disease in my area.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hello &  Welcome 

 

I'm in Butler ... I'm  the founder  of a gluten-free  support  group...If  you need  help  I'll be glad  to help you  along. I've  been  gluten-free for ten years  . Many  times  the  docs  give  the  dx's  but  nothing  after  that  so it  can become  a  challenge  to  find  the  gluten-free  foods,  where to buy, where to  eat , making  the house  safe &  so  on.... Please feel  free to  send  me  a private  message  &  I can give  you  my  off  site  addy if  you  wish... 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,506
    • Most Online (within 30 mins)
      7,748
    Lj314159
    Newest Member
    Lj314159
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Progesterone pills - are they gluten free??

      By trents · Posted

      Welcome to the forum, @Mettedkny! Your ttg-igg numbers are elevated but what about your ttg-iga numbers? Were your ttg-iga numbers elevated at your original diagnosis? The reason I ask is because elevated igg antibody test scores are more likely to be caused by something else besides a celiac reaction to gluten. The ttg-iga test is considered to be the centerpiece of celiac disease blood antibody testing. But some people are seronegative for the iga celiac tests, particularly if they are iga deficient. If they are iga deficient, the igg tests can be helpful. Have you ever had a "total iga" test run to check for iga deficiency?
    • Mettedkny
      Progesterone pills - are they gluten free??

      By Mettedkny · Posted

      Not sure where to start - been diagnosed for 17 years, and for 16 years my bloodwork has been perfect. Last May I started on HRT (estrogen patch & progesterone pill) for post menopausal symptoms, and to help with mild osteoporosis. In June my Gliadin IgG numbers suddenly went up to 59 (from previously being below 5 for 16 years). Did a deep dive on the progesterone pill manufacturer (Aurobindo) to ensure that the medication IS gluten free - and was told multiple times that there is no gluten in the pills. The pill is the ONLY thing that has changed, and my son, who is also celiac has perfect numbers.  Scoured my life to try and find out where the gluten could be coming from and the only thing I found was a tea I drank that had "possible wheat straw" (had been drinking this tea for about 5 years with no issues - and was confirmed by the manufacturer that their tea is certified gluten-free despite the "straw") - cut the tea out thinking that it MUST be the tea. Repeated the blood test 3 months later and it dropped to 55 - not indicative that the gluten has been found and removed from my diet. Had bloodwork done again yesterday and it is now 95 😳 I am completely floored. WHERE is it coming from??? I am SO careful. Would NEVER cheat, don't eat out and like I said, my son has NO issues and his number is 3 (as of yesterday). Has anyone had a problem with progesterone pills? It is the only variable that I can think of, but how do I prove that it is the problem without discontinuing to take the HRT (which I really need for post menopausal symptoms, sleep, anxiety, brain fog and hot flashes).
    • Nicbent35
      Gluten intolerance in toddler?

      By Nicbent35 · Posted

      That’s a good thought, I didn’t think of that aspect of waiting longer! Thanks 
    • trents
      Gluten intolerance in toddler?

      By trents · Posted

      Thanks for reporting back @Nicbent35! You seem to understand the options and the risks. So, it is a decision you will just have to make. But you don't have to make it right away. You might consider keeping her gluten-free for a while yet. I would give it six months before considering adding gluten back in. Make sure the improvement you are seeing is due to removing gluten and not something else that will pass such that you see a reversion to former behavior and symptoms.
    • trents
      Difficulty with doctors

      By trents · Posted

      If you have been on a strict gluten-free diet for several years, it would be normal for testing to show no evidence of celiac disease. No gluten, no inflammation. No inflammation, no antibodies and healing of the small bowel lining would result.  Personally, I think the doc gave you bad advice and I feel confident that trialing a return to gluten consumption would not be the advice that the vast majority of GI docs would give you. If I were you, I would seek a second opinion before resuming gluten consumption. 
×
×
  • Create New...