Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

When You Don't Get Glutened


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Oh, Chicago, how I love thee!

 

This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid) and ate the burrito stuff (in a bowl) they were using to make burritos at the BBQ, which could have been a CC disaster, but seems to be agreeing with me quite well. I had a few bathroom troubles, but they were more nerves/alcohol/forgot to take my enzymes related, and nothing to worry about.

 

Coming back from vacation without one bad incident feels like a victory! Gluten free happy dance!
As my boyfriend said, I should have all my meals flown in from Chicago. n

 

So, does anyone else have "victory" stories, times when you've done everything right AND it all turned out ok. Gluten-free happy dance moments?

 

Also, if you're ever in Chicago, go to Prasino's for the best gluten-free sandwich, Bountiful Eatery for entirely gluten-free fast food, and Big Star for the best tacos you will ever have (they only use corn tortillas).

And beer. Lots and lots of beer.

 

Cheers!

Peg

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aeraen Apprentice

I travel frequently, and must admit the only time I've had no issues is when I brought and ate my own food.  However, I don't live too far from Chicago, and my husband and I like to visit at least once a year.  I'll be taking your restaurant list with me the next time I go. 

Link to comment
Share on other sites
HumanDecency Contributor

Thanks for making me smile! I'll be adding Chicago to the vacation list.

I'm still working on eating at home... but hopefully someday restaurants will be back in the itinerary "other than water"

Link to comment
Share on other sites
Tbolt47 Newbie

Oh, Chicago, how I love thee!

 

This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid) and ate the burrito stuff (in a bowl) they were using to make burritos at the BBQ, which could have been a CC disaster, but seems to be agreeing with me quite well. I had a few bathroom troubles, but they were more nerves/alcohol/forgot to take my enzymes related, and nothing to worry about.

 

Coming back from vacation without one bad incident feels like a victory! Gluten free happy dance!

As my boyfriend said, I should have all my meals flown in from Chicago. n

 

So, does anyone else have "victory" stories, times when you've done everything right AND it all turned out ok. Gluten-free happy dance moments?

 

Also, if you're ever in Chicago, go to Prasino's for the best gluten-free sandwich, Bountiful Eatery for entirely gluten-free fast food, and Big Star for the best tacos you will ever have (they only use corn tortillas).

And beer. Lots and lots of beer.

 

Cheers!

Peg

Hello Pegleg84,

 

Born and raised in Chicago and prior to being diagnosed with Celiacs it is without a doubt one of the best cities anywhere if you enjoy food, and who doesn't. One of the foods I miss most is Deep dish Pizza . There are fair number of places to get very good thin crust gluten-free pizza but not Deep Dish. Very encouraging you had such great success with your diet on vacation. I am curious, so alcohol does not bother your Celiac's ? I have not found a Gluten Free Beer I like and really all forms of alcohol ( wine, gluten-free Beer, gluten-free Vodka etc.) gives me the same symptoms as though I have consumed gluten. I have been gluten-free for aprox. 6 months.

Link to comment
Share on other sites
GottaSki Mentor

I'm headed to Chicago in the Fall -- thanks Peg for a great starting list!

 

Glad to hear you had such a wonderful trip :)

Link to comment
Share on other sites
Pegleg84 Collaborator

I guess I put a little too much emphasis on the Chicago part of this post. I'm wondering about people's good experiences with... whatever. Maybe it's a family dinner that went well, or discovering that your local gluten-free bakery now makes doughnuts, or just going more than a month without any issues. "Yay! No glutening!" *happy dance* moments.

Link to comment
Share on other sites
Gemini Experienced

I've been doing this for 8 years now and can honestly say it's a rare day when I am glutened.  You become more confident and educated as time goes by and that helps greatly.  I go to the UK or Ireland every other year and usually have great success with that.  I am extremely sensitive also and get sick from crumbs....really sick.  But I also bounce back much quicker because I am healed and well now....no deficiencies to slow that down. 

 

It is very possible to travel successfully while gluten-free.  I usually eat breakfast in and the only meal I eat out at is dinner.  It really is a good feeling when you accomplish this and further boosts your confidence.  No one should put off travel because they are afraid to eat meals outside of the home.  Unless you have multiple intolerances, even the most sensitive of us can travel and not spend the entire time sick. I am going to the UK in September/ October and I don't even take that much food with me. I buy it there as their supermarkets carry many gluten-free items.

Taking a suitcase of food, when you have other suitcases to lug around, is a royal pain in the arse.  I guess it all depends on where you go.

 

NYC is extremely gluten-free friendly also and a great city to visit...ditto for Boston!  I have a nephew in Chicago so will visit there sometime and take this list with me!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,093
    • Most Online (within 30 mins)
      7,748

    Eva Ann
    Newest Member
    Eva Ann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...