Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Feel Like A Hypochondriac


jvdb

Recommended Posts

jvdb Rookie

Does anyone else feel like they are driving themselves crazy trying to figure out what causes their stomach issues?  At first I thought my issue was just chocolate milk and ice cream since I ate dairy on a regular basis and those two were the only ones that caused immediate symptoms.  I still often got chronic and urgent diarrhea but didn't connect it to dairy since I probably had milk products at least three times a day and grew up in a house where we had a glass of milk with every meal.

 

Fast forward to this year and I decided I was sick of being sick so I decided to try cutting ALL dairy, my issues improved immediatly.  No more unexplainable running to the washroom, no more sitting in the washroom with my stomach spasming uncontrollably...  I've found the problem I thought.  But realized although my symptoms were 80% better I still was experiencing loose stools 3-4 times a week, and major bloating.  My sister suggested getting tested for celiac and at first I thought she was crazy until I looked it up and read the connections with lactose intolerance and celiac.  We do have two cousins who have been diagnosed so it wasn't a long shot.  After looking at celiac symptoms I also realized that perhaps this was the solution to my adult acne, fatigue, and daily mild headaches.  It HAD to be celiac, well the test ended up being normal.

 

Now a friend who HAS celiac (blood test diagnosed) has told me to try going gluten free anyways and perhaps I still do have issues with it.  I'm tempted to try this however I am starting to feel like a major hypochondriac.  Although milk definitely doesn't agree with me, maybe the rest is all in my head?  My husband thinks I am overreacting and yet gets annoyed with me that I am tired all the time even though I sleep a solid 8 hours every night.  And WHY do I have acne at 25 years old when I eat NO processed foods, why does my stomach look great in the morning and then pregnant by evening?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

It's worth a try. I know a lot of people who feel better when they go gluten free (even without having Celiac). Non-Celiac gluten intolerance is not a rare thing these days. 

 

I went dairy free for the first few months of my Celiac diagnosis. It turns out that I can eat dairy just fine these days. But it didn't hurt to try.

 

Just make sure that if you try it, you do it 100%, otherwise what's the point?

 

Also, people who haven't dealt with constant stomach aches, cramping and bloating for years have no idea what that feels like. My (now ex) boyfriend didn't understand why I was so eager to figure out what was wrong with me. He was in complete denial that I was sick. (Meanwhile, I was thinking, "Well, it's not like I invite you into the bathroom to share that experience..."  :wacko: )

  • 2 months later...
ktylizbth Newbie

I would do a food log and note your bowel movements as well as other symptoms. Have several days without gluten. Then have a day with gluten and then note your stools. Take gluten out, take it back, take it out....Then maybe you might be able to see more of a connection. It'd be curious to do some type of elimination reintroduction diet to see what could be causing your bloating and loose stools. I would also consider getting allergy IgG and IgE testing if you can. 

1desperateladysaved Proficient

I remember being asked when the baby was due.  It isn't normal for a belly to stick out like that.  My issue was celiac and for years I thought I was lazy or hypochondriac, or it was all in my head.  IT WASN'T.  I would do all I could to find out if I could do it again.  In the end I  just decided that people could think "ill" of me if need be, because I couldn't keep living and dragging through life.  I want the same for you, answers to your questions, and the ability to make a difference.

 

Were you eating gluten when you had a celiac panel done.  Did you have a full panel done.  Have you ever checked your nutrient levels?

 

D

Rhonlynn Newbie

I found this forum looking up gluten intolerance. I'm 51 and was born with allergies. Here's my allergy list:

Milk (I can tolerate it in baked items, and most cheeses. But too much ice cream, or milk will give me an asthma attack. I was born this way.)

Eggs,

chocolate (I am able to eat cacao.),

some nuts (cashews must be soaked hours before I use them with cashew cheese recipes then there's no problem.)

Casein in milk gives me an awful migraine. It's been this way for years, getting a migraine after certain dairy products. I finally got tired of it, and thought, "milk protein." yep....

 

Then seasonal allergies.

 

I have eczema, which bugs me and I've had it all my life, on my outter arms near my elbows.

 

So I began working out doing P90X. I followed the diet in the book, and gained weight. I felt sluggish, depressed. I ended up hurting my shoulder so I stopped. I felt like a slug by then. I noticed something I've always done. I would get a rash, about the size of a small egg. I would itch it until the middle blistered in the center, it remained mild but embarrassing.. While reading up on milk allergies, gluten intolerance came up. I thought, why not? So I took myself off of wheat in general. That's not an issue, I have thousands of no cook food recipes, or grain free.

 

In the past 2 weeks, I feel lighter. It's winter, so I can't say about my skin yet. But I get up early, and stay up later. and my face is changing. I feel happier, and not like a slug...my scales died on me, so I have no idea how much I weigh.

 

I'm not one to go to a doctor very much, I'm a nurse. But sometimes, I felt like a hypochondriac, until I found this forum. 

 

Juliebove Rising Star

You might possibly have what my daughter has been going through.  Have they ever taken an X Ray of your stomach and the surrounding area?  She and I do both have multiple food intolerances, but...  She also suffers from severe constipation.  So much so that the last X Ray showed over 4 feet of impacted crud inside of her.  She was very bloated, in pain and had clusters of pimples on top of clusters of pimples.  I surmised that the constipation made her somehow toxic.

 

The Dr. told her she will need to take Miralax daily for the rest of her life.  Said she just has slow digestion although not quite what I have which is gastroparesis.  Said it is genetic and there really isn't anything she can do about it except to drink extra water and take the Miralax.  It took her a full week to clear it all out. After the second dose of Miralax, her face totally cleared up.  And she was pooping some that wasn't big D but not much.  Until a week later where she had to sit on the toilet for a full hour and a half.

 

The Dr. said that what happened was that she was so stuffed full and impacted that the only thing that could pass through was liquid.  Hence what appeared to be big D.  Not quite the same though.

 

Of course I can't say for sure if that is the case with you but from what I have read about the Miralax it seems perfectly safe to take so you might try it for a week and see if it makes a difference.

 

But I understand feeling like a hypochondriac.  My reactions to foods are often quite delayed and I can't always tell what is causing my symptoms.  But testing showed odd things like mint, cloves, thyme, lovage and other things.  Only after I stopped them did I see the problems they were causing me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...