Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac And Pancreatic Cancer?


Greengal

Recommended Posts

cyclinglady Grand Master

Each of us has a different set of personal set of circumstances.  You have to decide what is best for you.  If you suspect DH, it can be biopsied and a positive is a diagnosis of celiac disease.  So, if you should get glutened accidentally, it might be worth getting the biopsy.  In the meantime, consider searching for a celiac-savvy dermatologist.  

I do not have DH, but those that do must be on a really strict gluten-free diet.  Be care about cross contamination.  Read our DH section for tips and advice. 

Oh, the blood type diet is bogus (no scientific merit).  But you would be be better off learning more about the gluten free diet, if you seriously suspect DH because the blood type diet does not prohibit gluten.  

http://www.webmd.com/diet/a-z/blood-type-diet

I wish you well!  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
Just now, birdnflight said:

Thanks for the link! You answered my question about having to eat gluten to get tested. That's great news, I just need the gene test.

Not so fast!  About 30% of the population have the genes that could develop into celiac disease.  But in a few actually do about 1% or so.  So, genetic testing helps rule out celiac disease but it can not diagnose it.  Blood tests and an endoscopy are the accepted means of diagnosing.  just something to consider. ?

kareng Grand Master
53 minutes ago, birdnflight said:

Thanks for the reply. I guess I feel so much better eating for "my type" because it eliminates most grains & dairy. I think I read something in the book about type O's having a natural defense against cancer (except skin), but that something in the wheat protein (gluten?) will cause the tumors to grow considerably(sorry, don't have the book with me). My mom was relatively thin,, but always had a bigger gut proportional to her size. They ended up finding a tumor the size of a grapefruit near her gallbladder duct. Wish there was more info about all of this...I really don't want to start eating gluten again to find out if I have celiac. I'm just getting over bad DH

Throw the book away!  It isn't even based on actual biological science!

Here is an easy to read explanation-

https://nutrino.co/blood-type-diet-debunked/

 

If you actually have DH, diagnosed by a biopsy, you have Celiac.  

Just having the gene, doesn't not mean you have Celiac.  

http://www.cureceliacdisease.org/faq/if-i-have-a-gene-for-celiac-disease-does-that-i-mean-i-have-it/

 

The reason it is omportant to know if you are dealing with Celiac instead of some other reason for a wheat intolerance is that a Celiac must be very very very gluten free.  A person with other reasons, such as a FODMAP issue, can often eat a little gluten. 

birdnflight Newbie

I obviously have a lot to learn about this. I appreciate all the help☺ Thank you all!!!

  • 2 years later...
rosy lens Newbie
On 4/1/2004 at 4:08 AM, Greengal said:

Does anyone know if Celiac can make you more susceptible to pancreatic cancer? I know that it can cause problems with the pancreas and make intestinal cancers more probable, but is there any research on pancreatic cancer specifically.

I'm asking because my mom died fairly young of pancreatic cancer, and I've been told by doctors that it may be hereditary and I should watch out and what not, and now I've been having problems and am in the process of being tested for Celiac, but am getting a lot of resistance and the common "you're not thin enough to be a celiac" responses from doctors.

Obviously, if there is a potential link between pancreatic cancer and Celiac it would be very advantageous for me to find this out, especially since no one seems to be taking me seriously. So, any information would be much appreciated.

Thanks!

I was hospitalized for pancreatitis that was directly caused by inflammation of my small bowel. Any site on your body that receives repeated trauma is prone to cancer. Thats why certain diseases are said to cause cancer. I think the links between celiac and alot of other conditions are not yet researched. Many do not take celiac seriously or understand how sick some of us can get. My mother had pancreatic cancer of the bile ducts and received a total pancreatectomy over 5 years ago. In her case a combination of secondhand smoke and possibly undiagnosed gluten could be it. Her sister has chronic pancreatitis too.  I believe my father had celiac-- he had horrible gi trouble that they couldnt seem to diagnose years ago.  I was on creon before I went gluten free and dont need it now. My pancreas is better from the diet.

  • 5 months later...
Dede Newbie

Wow, everything here sounds like my members of my family. I remywhen the doctor told me to stay off of wheat and peanut, needless to say milk...I do very well with out gluten products and I feel very healthy. A Dr by the name of doctor Wallach said that all good health comes from the gut. Bad gut, bad health. Mom and brother died young and I am determined to not let it be me. Allergies can cause all kind of cancers from what I read. You can leave bread products alone or you can take meds. I have been doing good without wheat products really all of us.....

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Breakfast ideas besides oatmeal as Avenin can be gluten?

    2. - RMJ replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    3. - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    4. - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

    5. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,180
    • Most Online (within 30 mins)
      10,442

    Nancy sirois
    Newest Member
    Nancy sirois
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    • RMJ
      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
    • Aretaeus Cappadocia
      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
×
×
  • Create New...