Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Muscle Twitching

Leonard275

By Leonard275
in Related Issues & Disorders

Recommended Posts

Leonard275 Newbie
Leonard275
Posted

Hello all.  This is my first post, and I am simply wondering if any of you here have had a similar issue after diagnosis?

 

Well, my story goes: I was recently diagnosed with celiacs, a month ago actually, after a while of not having it treated.  Celiacs, for me, wasn't so much as a slow build up as it was a sudden storm.  Because of the sudden on-set of it, the doctors I dealt with thought it was a heart condition, GI cancers, and other GI issues; all my tests came back negative and the doctors were confused.  It wasn't until a friend of mine who has celiacs said I might have it that I asked the doctor to test me.  My blood test came back as celiac.  The other blood tests showed, or as I was told, were consistent with someone who has celiacs; I assume that meant my vitamins and whatnot were out of balance.

 

After diagnosis, though, one issue has stayed.  My muscles twitch, not constantly, but a good portion of the day.  The twitching is NOT focused in one area, but likes some areas more than others.  My quads, calves, tricep, and intestinal area.  Specifically, my intestinal area when I need to go to the bathroom.

 

I have seen a neurologist, the physical exam showed that my eyes, strength, and coordination are normal.  I am also having an EMG test soon.

 

My question is: have any of you had a similar issue?  Since June, I've just been wrought with worry because the sudden on-set of everything, and I would just like to know if any of you all have had something similar to help me worry less about what might possible be wrong.

 

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

What you describe sounds like it could be a nutrient deficiency like low magnesium or one of the B vitamins. Celiac disease results in the mal absorbing of nutrients because of damage to the micro villi that line the small bowel. There is also something called restless body syndrome that is rather a mystery (similar to restless leg syndrome). My wife takes ropinirole for restless leg. It helps.

Leonard275 Newbie
Leonard275
Posted
  • Author

Thank you for your post.

bartfull Rising Star
bartfull
Posted

This is an older thread but there was quite a bit of discussion about muscle twitching:https://www.celiac.com/forums/topic/64429-muscle-twitching/

 

There might be some info there that can help you. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

      Dang. I had a moment of hope that I could change my BP med and get off the gluten-free diet. Nope. More seriously, I hadn't seen this articles about this phenomenon before. This is one of the possible answers for people who post here about having celiac symptoms (including biopsy) but normal IgA levels, especially if they are saying that diet isn't helping...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    3. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

      I love Middle Eastern food and eggplant, and here is another version we shared some time back:
    4. Scott Adams
      - Scott Adams replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      I was diagnosed with celiac 15 years ago.

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product...
    5. Scott Adams
      - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      357

      Terrible Neurological Symptoms

      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      Zaalouk moroccan eggplant salad

      By Scott Adams · Posted

      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      I was diagnosed with celiac 15 years ago.

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, that time period was a shingles pre-cursor, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      I was diagnosed with celiac 15 years ago.

      By trents · Posted

      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
×
×
  • Create New...