Symptoms

[Rae2756]

Hello everyone,

 

I have been gluten free since December, and plan on staying that way for the rest of my life.

 

I have not been diagnosed with anything (as I understand the testing for Celiac disease and gluten intolerance is expensive and unreliable). The reason I started the diet was because of the insane, immediate, miserable bloating directly after most meals (I am a normal weight, with a small stomach, I would look eight months pregnant after eating); and the ridiculous constipation problems (was going maybe every 3-5 days). These problems have bothered me for years.

 

I went off of gluten for two weeks initially, and my stomach became totally flat with minimal bloating normally, and none after eating; and my system became regular once again. I decided to test it and ate something with gluten, and POOF, back came the miserable bloating, and it was two weeks before I became regular again.

 

I doubt I have Celiac Disease, I think I would have been much more ill if I did, but I think I definitely have some sort of gluten intolerance. I've ruled out dairy, so that's not it. 

 

Everybody I've talked to has had difference symptoms, so I was hoping to find someone with a similar story.

EDIT: Also, I have always had major problems with hypoglycemia, and have actually almost passed out behind the wheel as a result of it, but since going gluten free it's all but gone. 

[Lee uk]

Hello everyone,

 

I have been gluten free since December, and plan on staying that way for the rest of my life.

 

I have not been diagnosed with anything (as I understand the testing for Celiac disease and gluten intolerance is expensive and unreliable). The reason I started the diet was because of the insane, immediate, miserable bloating directly after most meals (I am a normal weight, with a small stomach, I would look eight months pregnant after eating); and the ridiculous constipation problems (was going maybe every 3-5 days). These problems have bothered me for years.

 

I went off of gluten for two weeks initially, and my stomach became totally flat with minimal bloating normally, and none after eating; and my system became regular once again. I decided to test it and ate something with gluten, and POOF, back came the miserable bloating, and it was two weeks before I became regular again.

 

I doubt I have Celiac Disease, I think I would have been much more ill if I did, but I think I definitely have some sort of gluten intolerance. I've ruled out dairy, so that's not it. 

 

Everybody I've talked to has had difference symptoms, so I was hoping to find someone with a similar story.

Hi Rae

I have the same with my stomach

I am going to the Dr on monday and going to ask for the test I whet on the atkins with the wife and my stomach went down in about 3-5 days. I only weigh 10st   but when I had bread again it was back its hard and looks like im pregnant.

had pasta last night and was sweating dont know if this is anything to do with it?

I really dont wona eat wheat and Gluten now I think this is whats causing me my problems but you have to to get a proper result from the tests. I have more symptoms as well. it was only when we was taliking to someone last week he said you need to talk to someone I know some one with Celiac and it could be that.

[bartfull]

I wouldn't rule out celiac just because you don't think your symptoms are bad enough. A lot of folks here had NO symptoms and were shocked when they were diagnosed with celiac. It sounds like you have decided to go gluten-free without the official diagnosis and that's fine. Just be aware that if you do indeed have celiac, you could be damaging your body with even the slightest bit of cheating or cross-contamination. So check out the Nebie 101 thread in the coping section. It'll teach you all sorts of things about how to avoid cross-contamination plus so much more.

 

Oh, and welcome.  Feel free to ask as many questions as come to mind. We're glad to help.

[Rae2756]

I wouldn't rule out celiac just because you don't think your symptoms are bad enough. A lot of folks here had NO symptoms and were shocked when they were diagnosed with celiac. It sounds like you have decided to go gluten-free without the official diagnosis and that's fine. Just be aware that if you do indeed have celiac, you could be damaging your body with even the slightest bit of cheating or cross-contamination. So check out the Nebie 101 thread in the coping section. It'll teach you all sorts of things about how to avoid cross-contamination plus so much more.

 

Oh, and welcome.  Feel free to ask as many questions as come to mind. We're glad to help.

Thank you so much for your reply. Digestive problems really run in my family so I wouldn't be surprised if Celiac runs in my family. I would be willing to bet my grandmother had it. I've lost ten pounds since going off of gluten, so I must be doing something right! I'm making sure I eat plenty of foods high in calcium and am taking vitamin B complex. Thanks!

[Rae2756]

Hi Rae

I have the same with my stomach

I am going to the Dr on monday and going to ask for the test I whet on the atkins with the wife and my stomach went down in about 3-5 days. I only weigh 10st   but when I had bread again it was back its hard and looks like im pregnant.

had pasta last night and was sweating dont know if this is anything to do with it?

I really dont wona eat wheat and Gluten now I think this is whats causing me my problems but you have to to get a proper result from the tests. I have more symptoms as well. it was only when we was taliking to someone last week he said you need to talk to someone I know some one with Celiac and it could be that.

Thank you for your reply. I'm glad I'm not the only person struggling with this embarrassing problem. Good luck with your doctor's appointment!

[SugarSpike]

I agree you shouldn't rule out celiac. I'm currently going through testing, have just ate gluten for 6 weeks so I could be retested as I think it's important to rule it out. I have no major digestive issues but like you do get bloated to the pregnancy look and can suffer constipation but I never suffer the opposite.

I wanted to say aswell I have suffered hypoglycaemia since childhood and have just been diagnosed with reactive hypoglycaemia, however since I've been back on gluten I'm having hypos on an almost daily basis even though I'm still eating healthy low sugar etc, I'm wondering if there may be a link.

[Rae2756]

I agree you shouldn't rule out celiac. I'm currently going through testing, have just ate gluten for 6 weeks so I could be retested as I think it's important to rule it out. I have no major digestive issues but like you do get bloated to the pregnancy look and can suffer constipation but I never suffer the opposite.

I wanted to say aswell I have suffered hypoglycaemia since childhood and have just been diagnosed with reactive hypoglycaemia, however since I've been back on gluten I'm having hypos on an almost daily basis even though I'm still eating healthy low sugar etc, I'm wondering if there may be a link.

I was never diagnosed with anything blood sugar related, but I remember having serious lows from YEARS back, younger than ten years. Once I took it before it got really low, and it was 56. I just talked to my doctor about it and he kinda blew it off (most doctors do), but since going gluten free (two and a half months now) I've only had maybe 2 issues during all that time, as opposed to every day, and that was only when I ate PURE sugar (syrup with my lovely gluten free waffles). 

Good luck with the test, I am not willing to eat gluten willingly ever again, so I'll likely never go through the testing. I feel like I have a normal sized stomach for the first time in a decade.