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Can It Be Celiac?


Misscellany

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Misscellany Rookie

I was diagnosed with Sjogren's syndrome earlier this year, after running several blood tests to figure out a back issue. I was positive for SS-b, ANA and ENA. 

 

I've been feeling pretty good the last few months, except for the extreme fatigue. I've recently connected it with eating. No matter how much or what I eat I feel like I've been hit by a truck RIGHT AFTER I eat. Only if it's just a bell pepper, I get fatigued. I started Googling food fatigue, and came across Celiac and so many things fit with me.

 

I moved to the States from Norway when I was 20 years old and I'm currently 33 years old. Ever since I moved over, my stomach has had a hard time adjusting (or that's what I thought), giving me diarrhea and extreme bloating. The diarrhea was so bad I was worried about eating out, especially at Italian restaurants, because I was afraid I wouldn't be able to make it to a toilet in time. Most of the time I looked like I was 7 months pregnant, and I am underweight if you consider the BMI standard at 18.2. 

 

I got pregnant when I was 30 and the diarrhea suddenly stopped. Then I had a miscarriage at 10 weeks...  This entire spring I have had few bowel movements (was up to 12 days in between), but it didn't cause me any discomfort or bloating for some reason. 

 

I have RLS that I manage by taking 1000 mg Magnesium. I've also has twitching eyelids since November which could be caused by another deficiency. Every single day my eyelids are twitching, even in my sleep. This winter, the twitching would spread throughout my muscles, but it seems to have set on my eyelids now.

 

I've had fatigue for as long as I can remember. I also have unexplained rashes. I have brain fog all the time. Symptoms that I do not have that seems to be common are headaches and depression. 

 

Even though I have the blood for Sjogren's, I measured within normal range for the lip biopsy and Schirmer's test. I've also had a low WBC since November, when I did my first blood test.

 

Here's some of the blood result I've had over the last year, I don't even know if any of these can point to Celiac, but please let me know if something looks familiar:

 

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SMRI Collaborator

I'm surprised they didn't run the Celiac panel.  Your IgA level is really low so the blood test for that won't come back accurate. Your IgG levels are ok so that might show something.  I would request an endoscope too.  Did you actually got to Mayo for your testing or did they just send the test to Mayo?  I was at Mayo on 6/20 as well so we may have crossed paths!!

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Misscellany Rookie

I was at the NIH for Sjogren's screening, that's probably why they didn't care about Celiac testing. I haven't been back to a doctor after getting these results back but I guess I should. 

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    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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