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Does It Ever Stop

Serielda

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Serielda Enthusiast
Serielda
Posted

Ok so Wednesday night I had to call out of work to go to the ER. My CT show I have an enlarged spleen and liver. But my enzymes did not show anything too whacked out. But something caused me quite literal knee dropping pain. Last Friday I had to go to the Dr.'s for a case of rhino sinusitis, and was prescribed Flonase, prednisone and amoxicillin. My Dr. Did look into all three to ensure they was safe for me. My question is has anyone here had experience with this? I have been extreme safe and strict on avoiding gluten, but right now I'm terrified, on the other hand today marks my one year anniversary since diagnosis. So I thought I should be a lot better by now. Any words of encouragement is welcome as I am disappointed and flipping out.

Thanks always,

A very sad scared serielda

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icelandgirl Proficient
icelandgirl
Posted

Aww...I'm so sorry. ((((Hugs))))

I don't have experience with what's going on with you but I understand your frustration. Another celiac and I have a couple of acronyms we use for all of this. WWIEE (when will it ever end) and IAS (it's always something). It definitely does feel like that at times...and when I walked out of my Dr's office with my diagnosis almost 16 months ago I really thought I'd be better quickly.

So, I try to remind myself of the things that have improved. Like I don't have D 10-20 times a day anymore. I'm not getting weaker every day, etc.

But I do get your fear and frustration. Please do vent and share as it may help to get it out.

Hugs again!

ravenwoodglass Mentor
ravenwoodglass
Posted

So sorry you are having these problems. I hope your doctor is following up on the liver and spleen enlargement. I wish I could be more helpful but will keep you in my thoughts. 

((((((((((((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))

Tigercat17 Enthusiast
Tigercat17
Posted

Ok so Wednesday night I had to call out of work to go to the ER. My CT show I have an enlarged spleen and liver. But my enzymes did not show anything too whacked out. But something caused me quite literal knee dropping pain. Last Friday I had to go to the Dr.'s for a case of rhino sinusitis, and was prescribed Flonase, prednisone and amoxicillin. My Dr. Did look into all three to ensure they was safe for me. My question is has anyone here had experience with this? I have been extreme safe and strict on avoiding gluten, but right now I'm terrified, on the other hand today marks my one year anniversary since diagnosis. So I thought I should be a lot better by now. Any words of encouragement is welcome as I am disappointed and flipping out.

Thanks always,

A very sad scared serielda

Hi Serieda,

 

I'm so sorry you're not feeling good. Sending hugs and prayers to you!! Do you feel like you're getting gluten from the medication? Did you call the pharm companies yourself? I always call personally.. I wouldn't trust anyone to check for me and I have gotten CC from medications before that claim they are gluten free.  :(

 

As for the enlarged spleen and liver, I never had issues with them, but I have had enlarged lymph nodes andd kidneys when I get gluten in my system. Maybe it's the same kind of inflammatory response? I wish I could be more helpful... I would just double check everything especially since you're so strict on the diet. It's sounds like you got glutened by something. I know for me every time I'm sick and have health problems, it's always and I mean always because of gluten sneaking in and I'm very strict and careful..

 

I hope you feel better soon! ((((((((((((((HUGS)))))))))))))))

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