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Serielda

Does It Ever Stop

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Ok so Wednesday night I had to call out of work to go to the ER. My CT show I have an enlarged spleen and liver. But my enzymes did not show anything too whacked out. But something caused me quite literal knee dropping pain. Last Friday I had to go to the Dr.'s for a case of rhino sinusitis, and was prescribed Flonase, prednisone and amoxicillin. My Dr. Did look into all three to ensure they was safe for me. My question is has anyone here had experience with this? I have been extreme safe and strict on avoiding gluten, but right now I'm terrified, on the other hand today marks my one year anniversary since diagnosis. So I thought I should be a lot better by now. Any words of encouragement is welcome as I am disappointed and flipping out.

Thanks always,

A very sad scared serielda

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Aww...I'm so sorry. ((((Hugs))))

I don't have experience with what's going on with you but I understand your frustration. Another celiac and I have a couple of acronyms we use for all of this. WWIEE (when will it ever end) and IAS (it's always something). It definitely does feel like that at times...and when I walked out of my Dr's office with my diagnosis almost 16 months ago I really thought I'd be better quickly.

So, I try to remind myself of the things that have improved. Like I don't have D 10-20 times a day anymore. I'm not getting weaker every day, etc.

But I do get your fear and frustration. Please do vent and share as it may help to get it out.

Hugs again!


January 2014-Celiac

August 2014- Hashimoto's

"You never know how strong you are, until being strong is your only choice."

Bob Marley

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So sorry you are having these problems. I hope your doctor is following up on the liver and spleen enlargement. I wish I could be more helpful but will keep you in my thoughts. 

((((((((((((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Ok so Wednesday night I had to call out of work to go to the ER. My CT show I have an enlarged spleen and liver. But my enzymes did not show anything too whacked out. But something caused me quite literal knee dropping pain. Last Friday I had to go to the Dr.'s for a case of rhino sinusitis, and was prescribed Flonase, prednisone and amoxicillin. My Dr. Did look into all three to ensure they was safe for me. My question is has anyone here had experience with this? I have been extreme safe and strict on avoiding gluten, but right now I'm terrified, on the other hand today marks my one year anniversary since diagnosis. So I thought I should be a lot better by now. Any words of encouragement is welcome as I am disappointed and flipping out.

Thanks always,

A very sad scared serielda

Hi Serieda,

 

I'm so sorry you're not feeling good. Sending hugs and prayers to you!! Do you feel like you're getting gluten from the medication? Did you call the pharm companies yourself? I always call personally.. I wouldn't trust anyone to check for me and I have gotten CC from medications before that claim they are gluten free.  :(

 

As for the enlarged spleen and liver, I never had issues with them, but I have had enlarged lymph nodes andd kidneys when I get gluten in my system. Maybe it's the same kind of inflammatory response? I wish I could be more helpful... I would just double check everything especially since you're so strict on the diet. It's sounds like you got glutened by something. I know for me every time I'm sick and have health problems, it's always and I mean always because of gluten sneaking in and I'm very strict and careful..

 

I hope you feel better soon! ((((((((((((((HUGS)))))))))))))))


Lisa

Infertility since 1995/Endometriosis

Hasimoto Thyroid disease 1998

Enlarged Abdominal Lymph nodes since 2003 - Stable

Thyroid Hurtle Cell Cancer 2008 Stage 1- Total Thyriodectomy 2008

Anxiety/Depression/Insomnia/Fatigue - Gone with gluten free diet

Acid reflux -LPR 7-2009 - Gone with a Strict gluten free diet

Celiac disease - positive upper endoscopy & Blood Test 9-2009

Undiagnosed celiac for 20 years - Gluten free since 9-13-09

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