Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Multi Diagnosis- Possible Celiac/lymphocytic Colitis/lymphocytic Gastritis/lymphocytic Epithelial Duodenum

celiwhat

Recommended Posts

celiwhat Rookie
celiwhat
Posted

I have been in a world of pain and finally after months of testing the GI specialists found a few things in my endoscopy and flex sig tests.

They found lymphocytic colitis, lymphocytic gastritis, and lymphocytic intraepitheial duodenal which they believe may be an indication of possible mild celic disease in its early stages but they cannot be sure. I was started on budesonide 3mg 2xs per day. I am posting on this because I have done a lot of research, yet have not found many answers. So I am wondering if on the off chance anyone has been diagnosed with all or some of these things before and what the outlook on the future is? I am feeling very distraught with the fact that there seems to be so much uncertainty when it comes to these things I have been diagnosed with. I have been miserable and the fact that They found something they hardly know how to handle has left me feeling hopeless. I have just turned 21 so I am a rare case, and I am just wondering if there is hope out there that I can have a somewhat normal life again? I have started a gluten free/dairy free diet and the medication. the medication is helping a bit, but I have read so much about people relapsing after the medication is over with which I am scared of.

Any experiences would be helpful. I Know there is a connection between these things and celiac, but Idk if it's common to have all three happening at the same time?

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Were your Celiac blood tests positive?

celiwhat Rookie
celiwhat
Posted
  • Author

Yes, I probably should have mentioned that. That was why we did an endoscopy/biopsy.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442
    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...