Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Some Ez Gluten Test Results And A Question


Hellbender

Recommended Posts

Hellbender Newbie

Howdy all. This is my fourteenth month after my celiac disease diagnosis. My first TTG result was 91. Eight months later it was 132. I realized then that what I thought was a gluten free diet wasn't.

I bought an EZ Gluten test kit a few months ago. They aren't cheap, about $150 for 10 tests. I tested all the foods that I was suspicious of and all results were negative for gluten.

I then stopped eating out. Even though I would order gluten free food I wasn't confident that it was prepared well enough to prevent cross contamination.

That seemed to help some since my number dropped to 52. Well, two months ago I was tested again and my number was up over 70 again.

So I'm on my second EZ gluten test kit and this time I'm making some progress. I discovered that the glucosamine that I've been taking for years tested positive for gluten. My multi vitamin tested very high positive. And the kicker, the omeprazole that my doctor prescribed has gluten according to my pharmicist.

Now I'm on the hunt for a gluten free acid blocker and multi vitamin. Any ideas?

Here is a list of my gluten tests so far.

1. Benecol light=NEG

2. Portland Pie gluten free pizza dough= NEG

3.Salada green tea zesty lemon= NEG

4. panda puffs cereal= NEG

5. colgate toothpaste= NEG

6. listerine soft mint= NEG

7. snapple rasberry ice tea=NEG

8. Yerba Mate organic tea= NEG

9. equate complete multi vitamin= VERY HIGH POSITIVE*

10. Schiff glucosamine plus msm=POS*

11. spring valley natural calcium=NEG

12.nature made triple flex glucosamine= Inconclusive

13. CVS brand OTC omeprazole=POS*

14. CVS brand ranitidine= POS

15. Nature made complete multivitamins= HIGH POSITIVE*

 

Those with an asterisk are labeled gluten free. The ez gluten test kit will detect levels as low as 10ppm.

I hope this info helps others.

Fred


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It looks like most of the positives were from supplements. Of course you have dropped those but if you are looking for safe ones do you live near a Wegmans? I take Wegmans supplements when I feel I need one. They have celiacs in their family and I have never had an issue with any of their products. That said if you can try and get as many of your nutrients from whole foods that is best. If you haven't already you may want to have your doctor run vitamin and mineral panels on you to see what you are low in. You never know you might be able to drop the supplements or fine tune them to just what you need. 

I haven't ever taken any of the prescribed acid blockers even in the beginning when I was still having stomach pain. I use Pepto Bismal liquid and it would help with just one dose. Don't know if that might be something you could try. Do make sure you go back to that pharmacist whenever you need a script for something. they know much more about the gluten statis of drugs than your doctor will and if something isn't safe they can call your doctor for a safe alternative.

Hellbender Newbie

It looks like most of the positives were from supplements. Of course you have dropped those but if you are looking for safe ones do you live near a Wegmans? I take Wegmans supplements when I feel I need one. They have celiacs in their family and I have never had an issue with any of their products. That said if you can try and get as many of your nutrients from whole foods that is best. If you haven't already you may want to have your doctor run vitamin and mineral panels on you to see what you are low in. You never know you might be able to drop the supplements or fine tune them to just what you need. 

I haven't ever taken any of the prescribed acid blockers even in the beginning when I was still having stomach pain. I use Pepto Bismal liquid and it would help with just one dose. Don't know if that might be something you could try. Do make sure you go back to that pharmacist whenever you need a script for something. they know much more about the gluten statis of drugs than your doctor will and if something isn't safe they can call your doctor for a safe alternative.

The nearest Wegmans is about an hour away. I will probably mail order another glucosamine supplement and test it.

I have an appointment with a specialist in Boston in a few weeks, I will mention the vitamin and mineral test.

Thanks,

Dan

bartfull Rising Star

I got my Glucosamine from Shopko. They have a line of vitamins and supplements that are free of gluten, corn, soy, sugar and a bunch of other stuff. I never got sick from any of it and you can now order them online. Look for Shopko Naturals.

 

That being said, I got no benefit from the glucosamine. I was on it for about five months and I finally gave it up. That stuff is expensive and it did nothing for my joint pains. What HAS helped is to limit nightshade vegetables and to cut out sugar.

  • 1 month later...
Shell156 Apprentice

Wow, Hellbender! Thank you so much for testing these and posting the results!

 

I am very sensitive to gluten. I haven't ever had a problem with megafood and I feel better when I take their women's multi.

 

Here is a link to the men's multi!

 

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...