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Hellbender

Some Ez Gluten Test Results And A Question

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Howdy all. This is my fourteenth month after my celiac disease diagnosis. My first TTG result was 91. Eight months later it was 132. I realized then that what I thought was a gluten free diet wasn't.

I bought an EZ Gluten test kit a few months ago. They aren't cheap, about $150 for 10 tests. I tested all the foods that I was suspicious of and all results were negative for gluten.

I then stopped eating out. Even though I would order gluten free food I wasn't confident that it was prepared well enough to prevent cross contamination.

That seemed to help some since my number dropped to 52. Well, two months ago I was tested again and my number was up over 70 again.

So I'm on my second EZ gluten test kit and this time I'm making some progress. I discovered that the glucosamine that I've been taking for years tested positive for gluten. My multi vitamin tested very high positive. And the kicker, the omeprazole that my doctor prescribed has gluten according to my pharmicist.

Now I'm on the hunt for a gluten free acid blocker and multi vitamin. Any ideas?

Here is a list of my gluten tests so far.

1. Benecol light=NEG

2. Portland Pie gluten free pizza dough= NEG

3.Salada green tea zesty lemon= NEG

4. panda puffs cereal= NEG

5. colgate toothpaste= NEG

6. listerine soft mint= NEG

7. snapple rasberry ice tea=NEG

8. Yerba Mate organic tea= NEG

9. equate complete multi vitamin= VERY HIGH POSITIVE*

10. Schiff glucosamine plus msm=POS*

11. spring valley natural calcium=NEG

12.nature made triple flex glucosamine= Inconclusive

13. CVS brand OTC omeprazole=POS*

14. CVS brand ranitidine= POS

15. Nature made complete multivitamins= HIGH POSITIVE*

 

Those with an asterisk are labeled gluten free. The ez gluten test kit will detect levels as low as 10ppm.

I hope this info helps others.

Fred

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It looks like most of the positives were from supplements. Of course you have dropped those but if you are looking for safe ones do you live near a Wegmans? I take Wegmans supplements when I feel I need one. They have celiacs in their family and I have never had an issue with any of their products. That said if you can try and get as many of your nutrients from whole foods that is best. If you haven't already you may want to have your doctor run vitamin and mineral panels on you to see what you are low in. You never know you might be able to drop the supplements or fine tune them to just what you need. 

I haven't ever taken any of the prescribed acid blockers even in the beginning when I was still having stomach pain. I use Pepto Bismal liquid and it would help with just one dose. Don't know if that might be something you could try. Do make sure you go back to that pharmacist whenever you need a script for something. they know much more about the gluten statis of drugs than your doctor will and if something isn't safe they can call your doctor for a safe alternative.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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It looks like most of the positives were from supplements. Of course you have dropped those but if you are looking for safe ones do you live near a Wegmans? I take Wegmans supplements when I feel I need one. They have celiacs in their family and I have never had an issue with any of their products. That said if you can try and get as many of your nutrients from whole foods that is best. If you haven't already you may want to have your doctor run vitamin and mineral panels on you to see what you are low in. You never know you might be able to drop the supplements or fine tune them to just what you need. 

I haven't ever taken any of the prescribed acid blockers even in the beginning when I was still having stomach pain. I use Pepto Bismal liquid and it would help with just one dose. Don't know if that might be something you could try. Do make sure you go back to that pharmacist whenever you need a script for something. they know much more about the gluten statis of drugs than your doctor will and if something isn't safe they can call your doctor for a safe alternative.

The nearest Wegmans is about an hour away. I will probably mail order another glucosamine supplement and test it.

I have an appointment with a specialist in Boston in a few weeks, I will mention the vitamin and mineral test.

Thanks,

Dan

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I got my Glucosamine from Shopko. They have a line of vitamins and supplements that are free of gluten, corn, soy, sugar and a bunch of other stuff. I never got sick from any of it and you can now order them online. Look for Shopko Naturals.

 

That being said, I got no benefit from the glucosamine. I was on it for about five months and I finally gave it up. That stuff is expensive and it did nothing for my joint pains. What HAS helped is to limit nightshade vegetables and to cut out sugar.


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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Wow, Hellbender! Thank you so much for testing these and posting the results!

 

I am very sensitive to gluten. I haven't ever had a problem with megafood and I feel better when I take their women's multi.

 

Here is a link to the men's multi!

 

http://www.amazon.com/MegaFood-Mens-Daily-Tablets-Count/dp/B00014G874

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