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Horrible smelling BM & Farts, gluten intolerant?

Bethanylynn

By Bethanylynn
in Coping with Celiac Disease

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Bethanylynn Rookie
Bethanylynn
Posted

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

  • 3 years later...
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Scott Adams Grand Master
Scott Adams
Posted

Hopefully you've now recovered, and have been able to stay on a gluten-free diet. Let us know!

  • 1 month later...
victor-dan Newbie
victor-dan
Posted

I don't think Gluten affects the smell in the intestines that much. I think the combinations of food you eat are more likely affect the smell. Are you eating fruits on an empty stomach. Are you combining meat with bread? Also, I think you should consider having some blood/stool/glucose tests to see if you have a virus/bacteria in your intestines. Bacteria LIKE Helicobacter and Giardia can create unpleasant symptoms. I had such viruses once and I had the worst symptoms ever (including pain and smell). I wish no one this thing.

  • 1 year later...
12345678901234567890 Newbie
12345678901234567890
Posted
On 11/9/2015 at 5:54 PM, Bethanylynn said:

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

I'm unfortunately celiac now after having C.diff which ulcerated my intestines. It's been 2 years, and I've only accidentally been exposed to gluten now 4 times. It's horrible. But i usually can tell it's from a gluten exposure because of the awful sulfur gas. The smell is so intense and will usually linger for days!!! There is NOTHING else like it.  

  • 3 years later...
Shaam Newbie
Shaam
Posted

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

trents Grand Master
trents
Posted
46 minutes ago, Shaam said:

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

You say your functional doctor says you don't have the gene (actually there's more than one gene that has been connected with celiac disease) but did that doc actually order a genetic test for that?

And you say you were tested twice for celiac disease and told you didn't have it. Sounds like you have been on and off gluten for some years. My question for you is, when you were tested had you been eating regular amounts of gluten for weeks or months? Many people don't realize the tests for celiac disease are invalidated if you are off of gluten.

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      Am I celiac or not?

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      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
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      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
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      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
    • somethinglikeolivia
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      By somethinglikeolivia · Posted

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    • Scott Adams
      Am I celiac or not?

      By Scott Adams · Posted

      If you look at the article that I shared you will notice that "The test is estimated to have a sensitivity of approximately 90%, which means that it correctly identifies 90% of people with celiac disease. It also has a high specificity of around 95%, which means that it correctly identifies 95% of people who do not have celiac disease," so your results indicate that you very likely have celiac disease, especially if you also have symptoms while eating gluten that go away when you stop eating it (although many celiacs don't have obvious symptoms).
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