Newly diagnosed, follow up endoscopy in 6 months?

[Rosie72]

I was newly diagnosed. My TTG was 54 and my lab work was somewhat confusing. It showed 'mild' damage. My GI doctor also sent the biopsies to another pathologist for a 2nd opinion and they agreed that because of my TTG, I have celiac. I have also found out that it runs in the family on my mother's side. My GI doctor wants me to do the endoscopy again but not the blood work. Is this normal? How often do you follow up with biopsies/bloodwork?

Thanks,

[Gemini]

1 hour ago, Rosie72 said:

I was newly diagnosed. My TTG was 54 and my lab work was somewhat confusing. It showed 'mild' damage. My GI doctor also sent the biopsies to another pathologist for a 2nd opinion and they agreed that because of my TTG, I have celiac. I have also found out that it runs in the family on my mother's side. My GI doctor wants me to do the endoscopy again but not the blood work. Is this normal? How often do you follow up with biopsies/bloodwork?

Thanks,

It really all depends on the patient. I never had a biopsy because my blood work was off the charts and I was too sick for a biopsy at the time I was diagnosed.  I did so well on the diet, I never felt the need to have one. It has been almost 11 years now and I am still doing well so you can see, it all depends on your experience. If you feel comfortable with the testing and you want to see what your gut looks like after 6 months, then you have the option of doing so.

The blood work should be repeated to make sure your tTg comes down well into the low normal range, at the one year mark. Then after that happens, every 1 to 2 years on the blood work should be fine.

Welcome and good luck!

[kareng]

Maybe share this from Celiac experts with your doctor? 

"New celiacs should receive follow-up testing twice in the first year after their diagnosis. The first appointment should occur 3-6 months after the diagnosis, and the second should occur after 1 year on a gluten-free diet. After that, a celiac should receive follow-up testing on a yearly basis. We recommend checking both tTG and DGP (Deamidated gliadin peptides) at each screening."

 

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Once I’ve been biopsy-diagnosed to confirm celiac disease, do I ever need to have another biopsy done?

Provided you received a clear diagnosis and aren’t experiencing issues there’s no reason to have another biopsy. Even though you may not notice any symptoms from consuming gluten, the disease is still active and can lead to severe complications over time if gluten is sneaking into your diet. Therefore, we recommend annual testing to check for elevated antibodies in your blood.

 

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[frieze]

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