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Washingtonmama

Is it Celiac or not?

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 Since I was diagnosed with Celiac disease, we had our two youngest (ages 11 and 16) tested. Our 16 year old is fine, our 11 year old had a high IgA but all the other tests were normal. Except he is anemic. Honestly, my brain hurts trying to figure this all out. I never did figure my own out. His doctor, who we love, says he thinks he is at risk for one day being diagnosed, but for now seems fine. The GI docs in our area are booked for months. What do these test results mean?

CELIACDP

 
  IgA
183
114.0-339.0 mg/dL

 
  Gliadin Peptide Ab IgA
17.2
Units

 
  Gliadin Peptide Ab IgG
3.8
Units

 
  Tissue Transglutaminase IgA
20.9High
Units

 
  Endomysial Ab IgA Scn
Negative

 
  Celiac Panel Interp

 
Results suggest the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis. Diagnosis should not be based on serologic findings alone. Results should be used in conjunction with other clinical findings and biopsy results for a diagnosis of gluten sensitive enteropathy

 

 

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Celiac.com Sponsor (A8):

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Keep him on gluten and make an appointment with the GI doctor. You could ask to be put on the cancellation list if you can get there on realitively short notice.  I hope you can get some answers soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Ask your son's doctor to call the gi dr for an appointment. We were told they were booked for the next couple months, and there was no way I was waiting that long. I called almost in tears to speak with our pediatrition about what to do for my son, and he called and got us an appointment for the following week. Amazing how they found that opening (eye roll). We had full celiac panels and genetic testing done on our other kids to check their probability of developing celiac. The combo (or lack there of) of the genes assesses the chance they have of developing celiac. Do keep him eating gluten until you can get further info though. If he needs a biopsy, he has to continue the gluten unfortunately. :(

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