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Celiac Prevention

Sare

By Sare
in Related Issues & Disorders

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Sare Newbie
Sare
Posted

I'm getting married soon (8 days) so we've been thinking about future and children and such. Is there anything I can do to prevent my child from getting celiac? I have it and I'm very sensitive. I was diagnosed at 9 after my dad was. Is there any way for me to keep my children from going through that? 

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cyclinglady Grand Master
cyclinglady
Posted

Welcome to the forum.  

Unfortunately, celiac disease is an autoimmune disease that is genetic, but not all people who carry the genes (about 30 to 40% of the population) go on to develop it.   I have a daughter who has two parents (one confirmed celiac and the other not) who can not tolerate gluten.  It would seem as though she would be doomed, but so far, she has tested negative.  Autoimmune disorders run rampant in both our families.  The only thing you can do is hope for the best.  The good news is that you are armed with knowledge and if you do have children who develop celiac disease, you can recongnize it right away.  

We all want to prevent our children from suffering or going through any kind of hardship.  We can not prevent it, but we can teach them the skills necessary for coping with anything life throws at them.  

Best wishes in your upcoming wedding.  Enjoy it!  

Ennis-TX Grand Master
Ennis-TX
Posted

I hate to say it and be Mr. Negative ass here. But I had this exact same thought about having kids, I do not wish any kids I have to have my AI issues, and decided I would wait a few decades if need be for the new gene editing things they are working on so we can have them changed. Call me crazy.

BergieF Explorer
BergieF
Posted
12 hours ago, Sare said:

I'm getting married soon (8 days) so we've been thinking about future and children and such. Is there anything I can do to prevent my child from getting celiac? I have it and I'm very sensitive. I was diagnosed at 9 after my dad was. Is there any way for me to keep my children from going through that? 

My 13 and 7 year old have Celiac Disease and my 4 year old has the genes.  I have a double dose of the genes so no matter what my children will get a gene that could develop into the disease.  I hope that my youngest son doesn't ever develop the disease, but his dr said it could activate later in life.  My kids are thriving, they have normal lives, they are smart and have gained knowledge about food that they can carry with them throughout their life.   They really don't let anything stop them from living a normal life.  I think you'll have the upper hand if you choose to have kids.  You'll have the knowledge of what to do to keep them safe if they do have Celiac Disease.  You'll be able to relate since you were young when you were diagnosed.  How was it for you growing up? 

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      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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