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Mermaid's Mom

Just an update about my daughter!

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Hi Everyone.

I haven't been on here much but some of you may remember me.  I am just returning to give you our update.

So what brought me here originally was that my daughter was textbook Gluten Ataxia and when we put  her on a gluten-free/DF diet she improved so much.    But like everyone else - she seemed to get "glutened" all the time and was clearly VERY sensitive.  Once we had her on the gluten-free/DF diet for a while we realized she was still getting sick and figured she must be also allergic to some of the other common culprits; corn, oats etc.  And on the advice of our Naturopath we put her on a Paleo diet.  I will spare you a LONG story of our journey following that - but the end result was that I learned about something called SIBO - which stands for small intestine bacteria overgrowth.

Celiac's are prone to SIBO.

So I ended up also finding a Dr. in Arizona that is doing AMAZING things resolving SIBO in people.  He has a developed a health plan for curing SIBO that is called the Nemechek Protocol.  It is dead easy to follow and all natural.  

So we started to implement the protocol and here we are 3 months later and my daughter is essentially cured from most of her issues.

She suffered from: 

Chronic constipation - Gone.  

Sleep issues/insomnia - Gone

Sensory Processing Disorder - Mostly resolved.  All sensory issues except some food/texture issues but even that is melting away daily and she is eating way healthier!

Chronic Fatigue -  100% GONE!!!  She was literally absent/late 150 days of school last year and now - NOTHING a true miracle!

Dysphagia (difficulty swallowing) - gone

Dyspraxia (A coordination disorder) - GONE.  almost 2 ys ago she stopped swimming in her mermaid tail.  Stopped most physical activity. She is now doing cartwheels and swimming in her tail again!

Brain fog - Gone.

Central Auditory Processing Disorder - 100% gone!  Her test results 12 mths ago were BAD.  She only had 40% processing in one ear and 65% in the other.  Now hearing is NORMAL!!

ADHD - GONE.  She went to Summer school and the teacher had no idea she had ADHD.  Her daily report cards said that she was "focused and on task" she also got E (excellent) in skills like organization, and time management.

AND...she is now eating ALL FOODS.  Even gluten!!  It took almost 3 months for her to be able to tolerate Gluten (it was still making her queasy) but this past week - pizza, buns, cookies!!  NO ISSUES.

She still has cognitive issues - difficulty trying to recall a word (could NOT remember the word Lunch even with hints) and still forgets what she was about to say but those issues are improving daily.  She is now able to do mental math etc.

Anyway...just thought I would share.  This Dr feels that most people with Celiac also have SIBO and that the SIBO is what is giving everyone all these issues.  Let me know if you have any questions! :)

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Nice to hear she is doing better. after months of antibiotics for a infection. I myself am now dealing with a candidia issue -_-  on stuff for it and just starting that regime lol. Thank god I am already on a ketogenic/paleo diet.

I was actually starting to wonder about you and your daughter yesterday.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Just now, Ennis_TX said:

Nice to hear she is doing better. after months of antibiotics for a infection. I myself am now dealing with a candidia issue -_-  on stuff for it and just starting that regime lol. Thank god I am already on a ketogenic/paleo diet.

I was actually starting to wonder about you and your daughter yesterday.

Thanks!!  I think about you often as well - you were such an "anchor" for me to cling to when I first landed here!  

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