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Wildfire123

Time of symptoms

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When my intestine are healed and gluten is non existent for a period of time then it takes me a week before the serious symptoms kick in.  I finally tested that by going on a stupid gluten binge a few months ago.  Ate some by accident, didn't have reaction immediately as some on this board have. When no symptoms appeared I decided I must not have Celiac disease so I ate everything gluten I had missed for 2 years.  By the 7th day the symptoms began and it was brutal.  In addition I vomited one night after eating cake which was my other sign that I did in fact have Celiac and so I gave it up and went back to gluten free.  It takes me almost a month for total healing.  If I eat gluten while my intestine are inflamed then the symptoms increase and are felt within 24 hours.  But if I go to totally healed and then get it by accident it takes a full week for the autoimmune symptoms to ramp up and start ravaging the lining of my intestines. 

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I get neuro symptoms within an hour or so but the severe D takes about 3 days. My stomach will get very noisy before that but the D only last a few hours. The fatigue and brain fog usually lasts a few weeks along with muscle and joint pain.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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