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vitiligo NOW?

1desperateladysaved

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1desperateladysaved Proficient
1desperateladysaved
Posted

I just stopped in to say that as of last May, I think I am 6 years gluten free.  I have both celiac and super-sensitive allergies to gluten. I can get really sick just by holding a vial of gluten in an enclosed jar.  Home has been gluten free and I am feeling quite well and am working with my diet carefully omitting everything possibly cross contaminated and currently I am just having meat and veggies along with a little fruit.  This seems to be making headway on healing my gut which I have had extreme trouble with ever since accidentally ingesting soy a year or so back.

 I have a new diagnosis of vitiligo.  I think that it may be not so new as I think I noticed a year and a half ago.  IT is usually covered by my hair and neckline so that even though I noticed it that long ago, I forgot along the way until I noticed it again recently.  As soon as I noticed it, I made an appointment with a dermatologist to find out that it was vitiligo.   I hoped that since I have already been strictly gluten free for so long it isn't spreading but today I had it checked and it had increased in size quite a bit.  I am wanting to hear anyone's experience with vitiligo in particularly healing with natural means.  The dermatologist offered me cream but I have trouble with detox and also it is only effective 50% of the time, so I sat back to see if it was growing or not.  Unfortunately, it does seem to be enlarging.

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cyclinglady Grand Master
cyclinglady
Posted

Nice to hear from you.  Sorry to hear about the vitiligo. I have no solutions, but  I hope someone else will.  ?

knitty kitty Grand Master
knitty kitty
Posted

Hello.  

Here's a study that found vitamin B12 and folate supplements can help.  Vitamins D, C, and E are supposed to help, too.  (I prefer the methyl forms of B12 and Folate.) It's possible the bad soy episode resulted in a period of poor absorption.  But even on a gluten free diet, some Celiacs develop vitamin deficiencies.  

Hope this helps.

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    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
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