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  1. Scott Adams

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    • Scott Adams
      I looked at the pumpkin seeds on nuts.com and see this warning--so there are many more allergens to worry about!  
    • Scott Adams
      Did your rosacea improve when you went gluten-free?
    • Nattific
      Hello, so back when I was a senior in high school (2020) I had about 8 months where I was completely unable to function, I was vomiting, lost over 20 pounds, had diarrhea and was really sick. This happened after I was hospitalized with cat scratch fever and cytomegalovirus. I have family members on both sides of my family with celiac and they told me my symptoms align really closely with what they experienced. I decided to cut out gluten and go gluten free.  It really helped, I was nearly normal again by 6 months. By the time I could finally see a doctor in person again I was already strictly gluten free for over a year. This doctor ran the blood tests, told me they were negative and that I just have a gluten intolerance. I assumed that was correct and stopped eating like I had an allergy as I assumed it was just an intolerance and that cross contamination would be fine. I would never eat gluten outright but I wasn’t careful at restaurants or even at home. Well now 5 years later and I’m back to being just as sick as I was back then (I’ve had lots of exposures that are my fault as I wasn’t taking it seriously because I didn’t think it was celiac). I was having a really severe reaction so I went to my doctor. I have a new amazing doctor who ran all my labs on Monday. My lipase is elevated, my liver enzymes are through the roof, all of my vitamins and electrolytes are low, and I’ve dropped 10 pounds since my last appointment. My doctor basically said all of this strongly points to a celiac diagnosis, but she doesn’t think it will come up on a blood test as I haven’t eaten anything with gluten directly in years. She told me she doesn’t want to do the gluten challenge (6-8 weeks of eating gluten) because of the signs that is damaging my other organs and she just put it in my chart as a severe gluten allergy. I’m just confirming this means I have celiac correct?    thank you for all your help Nate
    • Morgan Tiernan
      Hi all! Ive been away for a while navigating this new illness and also studying at university. But im back with so more updates and info, thank you all for your help and support.    Update: I suffered with an infection of my dermatitis herpetiformis a month or so ago. This resulted in a trip to a&e with an extremely swollen face, and a 2 week dose of doxycycline. Of course the infection went down but my dermatitis herpetiformis still remains to pop up every now and again. However, I’m coming up to almost a year being gluten free and I can honestly say the outbreaks are less often and more mild. But I’ve been eating extremely strict on a gluten-free diet (not much eating out and very cross contamination aware), so fingers crossed this continues.  As I am UK based, I have finally got through to dermatology and rheumatology in the NHS (no more private appointments which is great!) She was amazing and agreed on what sounds like dermatitis herpetiformis. However, she has also diagnosed me with chronic urticaria (hives) which will explain the swelling of my face, eyes, lips, and even sometimes tongue! So might be an allergy on the case, or perhaps another autoimmune condition due to the undiagnosed coeliac until this year. A skin biopsy has now been arrange for next month which is positive (there’s talks of me eating gluten for a day to activate the rash also, scary but they will have medication on site!)  Currently, I’m feeling more positive about my diagnosis and am so thankful to my hospital for the ongoing support I wasn’t able to get from my GP.  Things are looking up!
    • Morgan Tiernan
      Hi there! This is something I’ve often wondered too! I’m still going through the process of getting an official dermatitis herpetiformis diagnosis, however I’ve been battling for 3 years and the dermatologists are pretty certain it’s dermatitis herpetiformis/celiac disease with it’s classic appearance and symptoms (it’s nasty stuff!) About 2 years ago before dermatitis herpetiformis was on the cards, I suffered with a terrible episode of seb dermatitis, it was absolutely everywhere and was probs left undiagnosed for months before I could get in with a dermatologist! I used ketaconazole and it seemed to do the trick. However, knowing what we do now, the dermatitis herpetiformis was definitely aggravating/causing this and I found that it was the use of too many steroid creams (they thought I had eczema) and heavy moisturisers bothering my dermatitis herpetiformis.  Since being gluten free for a year, I haven’t really suffered with an episode of the seb dermatitis for a while. Just trying to navigate the dermatitis herpetiformis outbreaks now.  But definitely feel there could be a correlation! 
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