Not celiac but cant tolerate gluten,should I still need to be cautious about cross contamination

[mnilo]

I have hashimotos for more than 5 years.I gave up gluten last year because of my GI issues and it helped. My mom says she tested me for celiac when I was baby , so I guess  I'm not celiac .I gave up only gluten and healed a lot,I didnt get sick since then and don't have brain fog anymore. There are some questions I want to ask ;

I used a gluten containing shampoo last year and it caused itching  on my face and hair scalp.The day after I felt numbness all over my body and couldn't even move my body for  a few minutes.I have never had something like that before.Is it the reason of these symptoms 

I don't buy any products saying it doesn't contain gluten but may have cross contamination.But my mom cooks food with wooden utensils.She doesn't cook any food containing gluten she uses the stuff I bought only and does not use teflon,only uses stainless steel.But probably there's still a little bitt of contamination since we use same kitchen.

I used to not worry about it but loads of websites about autoimmune disorders made me paranoid about it and I just want to cry  I can't cook my own food because I have no time,preparing for uni exam.

I ate someting with hidden gluten last year and I got too sick and had a very bad diarrhea.

 I used to have eczema when my gluten intolerance started to deteriorate.

I don't wanna test for celiac because I dont want to eat gluten again,I don't like the taste of gluten containing grains and stuff made from them and makes my body sick.Im happy with my new diet.But again I'm asking,do I really need to avoid cross contamination in our kithen?My parents think that cross contamination won't hurt me and get angry when I tell them things like be careful about not spreading breadcrumbs everywhere etc..I don't think that they will change all utensils just for my paranoia 

Also,please,don't tell me I'm on a fad diet . This makes me fell very sad,why should I eat something makes my body can't digest?(Also,all my vitamin and mineral levels are well)

Sorry for my English grammar , thanks

 

 

 

 

 

[Jmg]

Hello and welcome

First, a negative test as a baby doesn't mean you don't have celiac. Things change over time. 

However, given you won't be eating gluten again I don't see any point in going down the testing route. You already have your body telling you not to eat it. You react to it, so you're likely either celiac or non celiac gluten sensitive NCGS (like me). Either way you need to avoid it totally.

54 minutes ago, mnilo said:

But again I'm asking,do I really need to avoid cross contamination in our kithen?My parents think that cross contamination won't hurt me and get angry when I tell them things like be careful about not spreading breadcrumbs everywhere etc..I don't think that they will change all utensils just for my paranoia 

Don't be put off by the people who tell you that if you're not a diagnosed celiac you'll be ok with a little bit or can take more risks. You need to take your own decisions. This is what Dr Volta, one of the leading researchers says about NCGS and cross contamination:

Quote

In my opinion, patients with non-celiac gluten sensitivity cannot tolerate gluten and cannot reintroduce gluten in their alimentation. Another important point is that of the small amounts of gluten for these patients represented by contamination in consuming food outside the home, probably, the majority of these patients do not tolerate small amounts of gluten presented by contamination. So, the situation is similar to those with celiac disease, probably not for the possibility of complications or major complications. But, because small amounts of gluten are able to cause the reappearance of symptoms.

So you're right to be concerned, but please don't let concern become paranoia. Take some sensible steps and then relax and enjoy your life. 

Why don't you ask your parents if you can keep your own cutting board, a sieve/colander and some plastic utensils in a separate drawer or cupboard? That would let you prepare food safely? 

Best of luck!

Matt

[Ennis-TX]

Celiac can be dormant for years after birth. It is suggested that children of people with celiac get tested every few years in case the gene becomes active. As for contamination your not paranoid at all. Any CC that makes you sick is proof you need to vigilently avoid it. Quick thoughts, uni ideas, nordicware makes microwave cookware for everything omelette, steamers, grill plates, rice cookers. You can keep your meals simple and use them with dedicated gluten free food mixing bowl etc. Omelettes are a go to staple for me and others. Butcher paper/freezer paper line the counter or table so you do not have to worry about crumbs on the counter use the lined serface as a clean prep area and eating surface