Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter
0
lizzie22

Could I have celiac disease?

Rate this topic

Recommended Posts

Hi!

So I have been having some symptoms that seem to line up with celiac disease. I have horrible stomach pain/bloating/gas daily, I have low bone density and have had 3 stress fractures in the past three years (even though I consume lots of calcium/vitamin d), I am short/thin, sometimes have trouble sleeping/wake up in the middle of the night, constantly hungry no matter how much I eat, and generally have low energy even when I get 8+ hours of sleep. I have had blood work done but it came back negative for celiac disease - I have heard of false negatives so is it possible that I could still have celiac disease? Any input would be appreciated. Thanks!

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Yes it is possible. Do you have copies of your tests and the results? Sometimes doctors don't run a full panel or the results are a low positive and the doctor will call it negative.  Also how long ago was it that you were tested. Just because you previously were negative on testing doesn't mean you still would be. Do not go gluten free until all testing is done related to celiac. After you have exhausted all celiac related testing then give the diet a good strict try.  Sometimes the body gives us answers that testing can not.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0