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Before40

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Before40 Newbie

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 


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kareng Grand Master
36 minutes ago, Before40 said:

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 

That is not a Celiac test.  So I am not sure how you know you don't have Celiac.  A lactose intolerance is quite common side effect of  Celiac

Ennis-TX Grand Master
1 hour ago, Before40 said:

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 

You can not diagnosis celiac with saliva and hair.....celiac is a autoimmune disease, where your immune system reacts to gluten. THE ONLY way to test is 1. Check the BLOOD for ANTIBODIES to gluten where you have to be eating it til you get them in your blood stream. 2. Checking for damage to your intestines like blunted vili by taking a biopsy of the small intestine.
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Lactose Intolerance is a MAJOR issue with celiac as the enzymes to break ti down are not present in sufficient quantity with the damaged villi. Vitamin D is another huge absorption issue with cealic disease. SO before you go dismissing it, go get the proper blood test done. There is a company you can send the blood in yourself and get tested much cheaper then the doctors office but it is VIALS OF BLOOD.

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    • xxnonamexx
      Try a multivitamin maybe it will cover what you are deficient in.
    • cristiana
      Agreed, and I can't remember exactly and haven't got time to check, but I think my blood didn't normalise for eight years! For years I read this forum thinking why can't I get my numbers down - everyone else manages to.   But my gastroenterologist didn't seem to worry about it, which makes me think he either thought I wasn't complying to the diet, or he'd seen similar cases.
    • trents
      Yes, being off gluten for 3 months would likely yield negative results. To get accurate testing redone you would need to restart gluten consumption for several weeks (the "gluten challenge") to the tune of at least 10g of gluten daily (about the amount found in 4-6 slices of wheat bread).
    • trents
      That is one of the tests covered in the article I linked you above.
    • RMJ
      Antibodies to Deamidated gliadin peptides.  It is another celiac antibody test. The main test is the one you had, TTG,  But a full panel will also include DGP IgA and IgG.  I was positive on all of them!
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