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Inadequate Explaination of Test Results

Jeb02840

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Jeb02840 Newbie
Jeb02840
Posted

Hello Everyone!

A little background history, about 4 years ago, I was diagnosed with Hypothyroidism and Hashimoto's Disease.  I had half of my thyroid removed due to an irregular biopsy.  No cancer, but a plethora of daily meds for the rest of my life!   My Endocrynologist ran a full comprehensive blood test and it showed that I was anemic as well as my liver functions were low.  She recommended that I visit my PCM and have him check both of them more extensively.  

Well, I did go visit my PCM, and he ran a Celiac Panel and a Ferritin test.  The Ferritin came back slightly anemic but my hemoglobin levels were fine!  However....my Celiac Panel came back with what seems to me to be a mess.  My Gliadin Ab IgG is 160 higher than normal, Gliadin Ab IgA is 234 higher than normal, my tissue transglutaminase Ab IgG is normal at 2 but my  tissue transglutaminase Ab IgA is >100 higher than normal and my IgA is normal at 258.   His nurse called me this afternoon and told me that my results "indicated" celiacs and that I was being referred to a Gastroenterologist as well as a nutritionist.  "Indicated", could you please be a bit more descript?????  Can anyone enlighten me as to what these results actually mean???  Do I have Celiacs?  And I Gluten Intolerant, or have a gluten intolerance???   This is just so frustrated?!?!

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tessa25 Rising Star
tessa25
Posted

You failed three celiac tests with flying colors assuming normal is < 20. Indicated you have celiac (in my opinion) means you have celiac. A high on anyone celiac test should mean you go to a gastroenterologist  for an endoscopy/biopsies to confirm the celiac diagnosis and see how bad the damage is.

You should keep eating gluten until the endoscopy.

CYA: I am not a doc

RMJ Mentor
RMJ
Posted

Many doctors will not give a firm celiac diagnosis without an endoscopy/biopsy.  I think that is why you were told your results “indicated” celiac instead of being told you have celiac.  With those antibody results it would be very surprising if the biopsy does not show celiac.

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    • Aretaeus Cappadocia
      Hypoglycemia, ketones in urine and weight lost. I need advice.

      By Aretaeus Cappadocia · Posted

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      Hypoglycemia, ketones in urine and weight lost. I need advice.

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