Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Confirmed Celiac Patient


Cheikh T Sylla

Recommended Posts

Cheikh T Sylla Newbie

Hi Everyone,

I have just joined the forum after having been diagnosed with Celiac disease a week ago through blood test (Immunoglobulin, A, Qn, Serum tested 452). I had an endoscopy, colonoscopy, abdominal ultrasound, and blood test. The colonoscopy showed a non-bleeding ulcer. I have always been a healthy person who does not smoke, nor drink. I exercise regularly, and have a good diet, but for the last 5 months--without knowing I had Celiac disease--I have been sick as follows:

  1. Tense stomach rejecting any food I eat
  2. Cannot drink regular water, only distilled water
  3. A lot of acid and gas in my stomach, which growls sometimes even 24 hours after eating
  4. Slow digestion of food in my stomach
  5. I am naturally skinny, but lost 20 lbs. I am 6' and I weigh now 128 lbs
  6. I have been so weak and unable to do any meaningful physical activity
  7. Headache on the right side and now on the left side
  8. Muscle spasms all over the body (my doctor said it is because I am weak and under-nourished)
  9. Moving hairlines in my eyes (my optimalogist could not see anything wrong with my eyes)

After meeting with my GI to review the battery of tests, Celiac came out as an issue. He prescribed Omeprazole to reduce the acid, and I have been taking it for a month now since my endoscopy. Last week I met with my primary physician to review the test results, and she recommended going gluten-free. She also prescribed Carafate to protect the lining of the stomach from the acid and allow the non-bleeding ulcer to heal. She also recommended that I take supplements for men since I have lost weight and I am weak.

Questions:

  1. Is Celiac disease capable of all that mischievous ill as I continued to eat gluten without knowing for 5 months?
  2. If the excess acid is due to the disease affecting my digestive process, shouldn't abate with a gluten-free diet?

All of that said, I am feeling much better and the symptoms are going down compared to even one week ago. Please share any thoughts you may have. Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi,

Welcome to the forum! :)

Yes, celiac disease can cause most of that and more.  The ulcer could be the result of bacteria having an easier time colonizing a weakened digestive system.  Excessive gas is not unusual and can cause pain in the stomach and bowels.  Slow food transit is a good possibility also.

Celiac disease damages the lining of the small intestine, which causes digestive problems.  There are chemical triggers made in the gut that trigger the gall bladder to release bile.  If the gut is damaged those chemicals signals may be missing.  Also the gut lining makes digestive enzymes like lactase that breaks down milk sugar (lactose).  Not having that enzyme means dairy sugar is not broken down so bacteria get a mega dose of sugar to feed on.  That can cause gas and D etc.

The other problem is the damaged villi lining of the small intestine has a hard time absorbing nutrients like vitamins and fats.  That means you may lose weight and develop vitamin deficiencies and fatigue/weakness.  Insomnia is a another common issue.

All this is a good reason to change your diet.  Try sticking with whole unprocessed foods for a couple months.  Avoid dairy and sugar and carbs like bananas, white rice,  etc.  Make sure to eat lots of protein to give your body the tools it needs to heal.

There is a "Newbie 101" thread in the "Coping With" section that has some getting started tips.

You may find that peppermint Altoids or peppermint tea help to get gas out of the stomach.  Think about eating well cooked foods that are easier to digest.  Sometimes digestive enzymes may be helpful

Cheikh T Sylla Newbie

Thanks GFinDC. I appreciate the suggestions. It is very helpful.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,076
    • Most Online (within 30 mins)
      10,442

    Murielle Beaulieu
    Newest Member
    Murielle Beaulieu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...