Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Advice?


dannyboy123

Recommended Posts

dannyboy123 Newbie

So for a while now I’ve been having this “periods” of illness, I’m talking extreme fatigue/lethargy, headaches, nausea, etc. It comes on suddenly and lasts for around a week. I’ve had Open Original Shared Link for all things such as deficiency, thyroid etc and all have come back fine. 

 

Yesterday I ate a foot long subway sandwich, and within 2 hours I was asleep and woke up feeling like this AGAIN. I don’t have diahorrea but I am gassy and it doesn’t smell great (gross I know). Do you guys think this could be linked to gluten? 

The thing that confuses me most is that sometimes I can eat a pizza and be fine, but then all of a sudden this happens, I eat gluten every day, so why does it happen occasionally? Does this mean it’s not gluten? I’ve had blood tests for every thing and all is fine.. I’m so confjsed

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

It's possible it's gluten. Why off & on, off & on? It can do that until one day it doesn't stop. You say you've had blood tests for everything but have you had the celiac panel? You should get it. here's the full panel:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA 


Also can be termed this way:

Endomysial Antibody IgA
Tissue Transglutaminase IgA 
GLIADIN IgG
GLIADIN IgA
Total Serum IgA 
Deamidated Gliadin Peptide (DGP) IgA and IgG

Link to comment
Share on other sites
dannyboy123 Newbie

Hey thanks for your reply. But I thought they couldn’t test for NCGS? I think I’ve been tested for coeliacs before 

Link to comment
Share on other sites
squirmingitch Veteran

They can't test for NCGS. I gave you the tests for celiac. If you think you've been tested for celiac then you should get your records & make sure. Also, if you actually were tested for celiac, that doesn't mean you are good for life. Celiac can present at ANY age so if you get tested it doesn't mean you will NEVER present with celiac. So IF you DID get tested before, unless it was in the last 6 months or so, you should be tested again.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...