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Coping with Incontinence

jonezy1300

By jonezy1300
in Coping with Celiac Disease

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jonezy1300 Newbie
jonezy1300
Posted

I'm pretty new to the celiac lifestyle; I have been officially diagnosed for almost a full year now. As a nineteen year old girl living in a lively college town, it has been pretty difficult to totally avoid gluten. However, I have been dodging it at all costs. My side effects when consuming gluten have come down to gastrointestinal problems (constipation, diarrhea, unavoidable gas, all the pretty stuff). A couple of months ago, I started to have a stress/fecal incontinence issue when I accidentally consume gluten. I don't know if my pelvic floor muscles weakened because of gluten exposure, but I do know that every time I consume gluten I experience fecal incontinence until the poison's completely out of my system. I'm posting on here to see if anyone else has experienced/experiences this problem, and if there is any way to cope with it? I have tried doing kegel exercises and they have helped with my urine-based incontinence, but the other problem has not improved at all. I am very tired of having to deal with this issue. It's embarrassing, humiliating, and I feel alienated as I have no one close to me to talk to about this.

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ravenwoodglass Mentor
ravenwoodglass
Posted

So Sorry you are having to deal with this problem. I know it is an embrassing problem to discuss with your doctor but have you talked with the doc about it? Some women find it easier to talk to their OB/GYN than their GP. There are physical therapists that specialize in this type of issue and can help resolve this and your doctor can refer you to one.

You may be having neuro impact that is contributing to this so you REALLY need to be doing all you can to stay safe and prevent cross contamination. It is not easy but it is crucial. Do read the Newbie 101 thread at the top of the Coping section and ask any questions needed. You're not alone in struggling with the diet and celiac's many impacts. I hope this resolves for you soon.

  • 2 weeks later...
Posterboy Mentor
Posterboy
Posted
On 9/24/2018 at 8:58 PM, jonezy1300 said:

I am very tired of having to deal with this issue. It's embarrassing, humiliating, and I feel alienated as I have no one close to me to talk to about this.

Jonezy,

You might look into this research.

Being in college is obviously a very stressful time. .. ..it is this time when latent viruses can attack our Immune system.

new research is showing that EBV can lay hidden in our system and sometime cause(s) us GI problems and without the doctor knowing to look for it the EBV infection is overlooked.

Here is the research on bladder issues linked to EBV.

https://www.renalandurologynews.com/overactive-bladder-oab/interstitial-cystitisbladder-pain-syndrome-linked-to-epstein-barr-virus/article/800858/

Here is the research linked to diarrhea possibly caused by an undiagnosed EBV infection entitled "Epstein-Barr Virus-Related Diarrhea . . .."

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2681871/

Note this person was like you --- a young(er) person under 30.

As they note  quoting "This may be particularly relevant in younger patients with IBD, as primary EBV infection is common in this age group."

And being in college the stress may have cause a flare of an earlier infection.

See also this article by Dr. Oz that explains how to check for it.

https://www.doctoroz.com/article/secret-life-epstein-barr-virus

You may have had also painful mouth ulcers since it commonly related to tonsillits (especially tonsil stones) and/or herpes virus (mouth sores) etc.

I hope this is helpful but it is not medical advice.

You might want to take some Magnesium as Magnesium Citrate or Magnesium Glyincate as well or take a bath with Epsom salts.

Magnesium will help give you energy and being low in it been shown/linked to an EBV infection because they bind to the same receptor in the body and when low in Magnesium  . . .then EBV can bond there instead leading to CFS.

Here is a link about the role Magnesium plays in a chronic EBV infection.

http://simmaronresearch.com/2015/08/epstein-barr-virus-the-magnesium-connection/

Again I hope this is helpful but it is not medical advise.

 “Consider what I say; and the Lord give thee understanding in all things” this included.

  2 Timothy 2: 7 

Posterboy by the grace of God,

 

  • 2 weeks later...
RyanPercival Newbie
RyanPercival
Posted

Feeling really sorry to hear about it. 

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