Should I seek further testing?

[ChooseJoy]

Hi!

 

My pediatrician recently had my son tested for celiac disease.

His IgA came back negative, the IgG was positive.

I, his Mom, have celiac disease and I am wondering if I should seek further testing with a GI doctor?

The pediatrician said he was negative for celiac disease, I just want to make sure I do not miss anything.

thank you,

Tracy

[Scarlettsdad]

37 minutes ago, ChooseJoy said:

Hi!

 

My pediatrician recently had my son tested for celiac disease.

His IgA came back negative, the IgG was positive.

I, his Mom, have celiac disease and I am wondering if I should seek further testing with a GI doctor?

The pediatrician said he was negative for celiac disease, I just want to make sure I do not miss anything.

thank you,

Tracy

I would definitely seek further testing. From what I've read, celiac disease is often overlooked and miss-diagnosed (specifically, false negatives). Regardless of the outcome, you'll know you covered all your bases. 

[frieze]

you need a new peds, if the IgG is +, he needs further testing, esp. since YOU are dx celiac.  

[ChooseJoy]

That’s exactly my thought. Especially because all of my blood work came back negative and a biopsy diagnosed me! I feel like if even one part is positive that is more than what I had and I have it. 

[cyclinglady]

Consider getting the entire celiac panel.  If my GI had not ordered it, my diagnosis would not have been made.  I test positive to ONLY the DGP IgA, yet my biopsies revealed severe damage.  Even in follow up testing, I have never had a positive on the EMA or common screening TTG.  The DGP is thought to be better in small kids and who knows why I test out this way.    Not everyone presents as a “cookie cutter” patient.  Just like you!