Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Brand new

mrslcobb

Recommended Posts

mrslcobb Newbie
mrslcobb
Posted

Hi All,

My now 8yo son has been going through the testing process for celiac. We were told today that there was damage to his villi in his last biopsy 2 weeks ago and to start strict gluten free and have another biopsy in 6 mos. 

He is a very picky eater and most of the things he likes are gluten-filled.

Any advice or words of wisdom for a newbie momma would be appreciated!

 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome! 

I do not have much time, but you can start with our “Newbie 101” thread located under the “Coping” section of the forum.  It contains some great tips.  

 

 

 

Link to comment
Share on other sites
GFinDC Veteran
GFinDC
Posted

Hi,

Celiac disease is an auto-immune condition.  So you should be aware that even a tiny amount of gluten can cause the reaction to flare.  And because the immune system is serious about it's job, the reaction can keep going for weeks to months.  So we need to be careful about avoiding cross-contamination as happens in shared peanut butter jars, mayo, toasters, etc.

There is also  the possibility that immediate family members may develop celiac or already have it.  There are a couple of genes that trigger celiac so anyone with the genes is a candidate.  The genes don't make you get celiac, but make it more likely to get it.  The celiac genes are also associated with other AI diseases.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Bayb
      - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep...
    2. Aussienae
      - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain.
    3. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    4. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      What kind of stool test was done? Can you be more specific?
    5. mishyj
      - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748
    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...