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mrslcobb
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mrslcobb Newbie
mrslcobb
Posted

Hi All,

My now 8yo son has been going through the testing process for celiac. We were told today that there was damage to his villi in his last biopsy 2 weeks ago and to start strict gluten free and have another biopsy in 6 mos. 

He is a very picky eater and most of the things he likes are gluten-filled.

Any advice or words of wisdom for a newbie momma would be appreciated!

 

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cyclinglady Grand Master
cyclinglady
Posted

Welcome! 

I do not have much time, but you can start with our “Newbie 101” thread located under the “Coping” section of the forum.  It contains some great tips.  

 

 

 

GFinDC Veteran
GFinDC
Posted

Hi,

Celiac disease is an auto-immune condition.  So you should be aware that even a tiny amount of gluten can cause the reaction to flare.  And because the immune system is serious about it's job, the reaction can keep going for weeks to months.  So we need to be careful about avoiding cross-contamination as happens in shared peanut butter jars, mayo, toasters, etc.

There is also  the possibility that immediate family members may develop celiac or already have it.  There are a couple of genes that trigger celiac so anyone with the genes is a candidate.  The genes don't make you get celiac, but make it more likely to get it.  The celiac genes are also associated with other AI diseases.

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