Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions about Biospy


Weshake

Recommended Posts

Weshake Newbie

Hi. 

I had a blood test about 5 years ago from a gym, that said I had a gluten allergy. At that point in my life I’m was miserable, terrible GI issue, depression, fibromyalgia symptoms, migraines, mouth sores, I could go on, I’m sure you understand. 

I chose at that time to eliminate gluten from my diet. The transformation was incredible. While I still from time to time get mouth sores and GI issues I’d say my symptoms on a regular basis are 80% better. 

I never purposely invest Gluten because I know it’ll make me miserable. But at times I’m still miserable. I know I got glutened about 2 weeks ago, and I’m still recovering. My physician ordered an EGD, and not specifically to test for Celiac Disease Foundation but because I’ve been having so many issues the last 6 months. 

My question is, I know they will take biopsy’s, that can confirm or deny Celiac, but like I said I am on a gluten free diet, and I’m guessing if my symptoms are from a gluten sensitivity or Celiac it is from unknown exposure or cross contamination. Will they test still show Celiac if im gluten free? I can’t imagine purposely eating gluten before I take the test. I mean right now I’ve been sick for about 2 weeks, but I don’t even have the appointment set up. It wasn’t until this last exposure that I even questioned maybe I have Celiac, since I was told I was sensitive to gluten and cut it out of my diet I’m been so much better with times of not feeling good which I just attributed to exposure, it just seems the longer I go gluten free the worse the flare ups are. 

Thanks for your time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Airlion Rookie

Hi, I hear you loud and clear. So, yes you have to be eating gluten for a MINIMUM of 2 weeks, equivalent to 2 pieces of bread a day, in order to have an accurate test. Going gluten free heals the intestine. So essentially you are trying to show the damage it does. I would suggest longer. For the blood test for celiac apparently you have to be eating gluten for 12 weeks prior to the test. I have my endoscopy tomorrow and have been eating gluten for 3 weeks. It has been terrible. I am glad this is almost over. And celiac or not, I am staying far far away from it. Good luck to you! Let us know how it all goes. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,542
    • Most Online (within 30 mins)
      7,748

    NoemiMG
    Newest Member
    NoemiMG
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...