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Positive Biopsy, Positive Blood, NEGATIVE Genetic

Wolfie839
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Wolfie839 Newbie
Wolfie839
Posted

I'm looking for some sort of guidance here. I had a positive biopsy, positive blood test and was diagnosed with celiac disease from my GI doctor. Was curious and wanted to learn more so I decided to reach out to a celiac disease specialist. She did a genetic test on me and it came back negative. What does this mean?

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ravenwoodglass Mentor
ravenwoodglass
Posted

It means that, like myself, you have one of the rarer celiac associated genes. Welcome to the board and the 'club' you never wanted to join. Do be sure to read the Newbie 101 thread at the top of the Coping section and feel free to ask any questions you need as we have a lot of very knowledgeable folks here that can help.

Be sure also to encourage all 1st degree family members to be tested even if the don't seem to be having symptoms.

cyclinglady Grand Master
cyclinglady
Posted
(edited)

Welcome to the “odd duck” club where you do not fit neatly in a box or on the bell curve.  Rare, unusual, and unique are words that best describe some of us.  

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Edited by cyclinglady

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