Feeling dizzy nearly a year on!!

[Emilydeaconx]

Hi everyone,

I was diagnosed around May 2018 and I immediately quite gluten. Ever since being diagnosed I have had constant dizzy spells. Sometimes it can be quite bad and sometimes its not as bad but I always notice it everyday. I am very careful with what I eat everyday but it feels like my body is still getting used to it or its like I'm still eating gluten. Its making my anxiety quite bad and after nearly a year of being constantly dizzy I want to get rid!! Does anyone have any suggestions? I have been to the doctors for blood tests for iron, calcium ect. and everything came back normal.

 

Thank you!

[cyclinglady]

Did you get follow celiac antibodies blood tests?  This will help insure that your celiac disease is not active.  Then you can rule out celiac disease as a cause of your dizziness.

Dizziness can be caused by so many things as evidenced by this Wikipedia definition:

https://en.m.wikipedia.org/wiki/Dizziness

Maybe you can see another doctor?  

[Emilydeaconx]

14 minutes ago, cyclinglady said:

Did you get follow celiac antibodies blood tests?  This will help insure that your celiac disease is not active.  Then you can rule out celiac disease as a cause of your dizziness.

Dizziness can be caused by so many things as evidenced by this Wikipedia definition:

https://en.m.wikipedia.org/wiki/Dizziness

Maybe you can see another doctor?  

I had a blood test a couple months ago that said my antibodies were 18 or 20 I cant remember exactly. Which I thought was good because last May I was 128. Could this be why? The only reason I put it down to coeliac is because it feels exactly the same as when I first got diagnosed but just a bit eased down. Before I never got dizzy.

[GFinDC]

Hi Emily,

Like CL said, there are lots of possible causes for dizziness.  One possibility is food reactions.  You can test your body for those by stopping eating foods that might cause the reaction.

Some suggestions of foods to try eliminating.

soy,

dairy,

coffee/tea/caffeine,

sugary foods,

nightshades

Eliminating certain foods from your diet is a simple way to test your reactions.  It is good to do at least a month long elimination before deciding if there is a problem with the food.  Some times symptom improvements take several weeks to happen.

[Emilydeaconx]

9 minutes ago, GFinDC said:

Hi Emily,

Like CL said, there are lots of possible causes for dizziness.  One possibility is food reactions.  You can test your body for those by stopping eating foods that might cause the reaction.

Some suggestions of foods to try eliminating.

soy,

dairy,

coffee/tea/caffeine,

sugary foods,

nightshades

Eliminating certain foods from your diet is a simple way to test your reactions.  It is good to do at least a month long elimination before deciding if there is a problem with the food.  Some times symptom improvements take several weeks to happen.

That's a point I might have to try this one! Thank you

[GFinDC]

34 minutes ago, Emilydeaconx said:

That's a point I might have to try this one! Thank you

That's good Emily.  It's much cheaper than going to the doctor and more effective too if it is a food reaction.  I left out oats as a possible food trigger.  There is a small percentage of celiac's who react to oats like they do wheat, rye and barley.  So for those people oats are a big no-no.  I am one of them so oats are a real bad deal for me to eat.  And they put oats in a lot of gluten-free labeled foods.

I had fainting spells myself when I went gluten-free.  Most of the time I would not faint but would get weak and confused.  I eliminated soy from my diet and after a few weeks that stopped.

Here is an article about the vagus nerve.  A GI condition can be implicated in vasovagal reflex, where blood pressure drops suddenly.  

So GI conditions can cause fainting is the upshot.

https://www.verywellhealth.com/the-importance-of-the-vagus-nerve-1746123

Sudden stimulation of a vagus nerve can produce what is called a "vasovagal reflex," which consists of a sudden drop in blood pressure and a slowing of the heart rate. This reflex can be triggered by gastrointestinal illness or in response to pain, fright or sudden stress. Some people are particularly prone to the vasovagal reflex, and their blood pressure and heart rate changes can cause loss of consciousness — a condition called "vasovagal syncope.

[cyclinglady]

So true.  Food intolerances are so common!  Some resolve and some do not.  Definitely worth investigating.