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Positive for two genes

Stacy0w

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Stacy0w Enthusiast
Stacy0w
Posted

A friend had a daughter diagnosed a few months ago. She, her husband and their other two children were gene tested following. Friend was positive for one, kids were negative, and husband was positive for two. Husband was scoped Tuesday. Dr told him to go completely dairy free until the results come in as he has GI issues and dairy has been an issue in the past. Dr also told him is the biopsy is negative that rules out celiac being an issue for him for always. My understanding is that with both genes being positive he can at anytime develop celiac in the future. Trying to get some clarity for her so she can ask the dr better questions when they go back for biopsy results. Thanks!

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cyclinglady Grand Master
cyclinglady
Posted

Celiac disease can develop at anytime in your life. 

https://www.webmd.com/digestive-disorders/celiac-disease/news/20100927/celiac-disease-can-develop-at-any-age#1

https://celiac.org/about-the-foundation/featured-news/2018/03/importance-detecting-celiac-disease-later-life-2/

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  • Posts

    • Newhere19
      New to all of this

      By Newhere19 · Posted

      Thank you both. I haven't had access to the test results but will get them and post here.
    • jjiillee
      Daughter waiting for appointment

      By jjiillee · Posted

      The ulcers are prepyloric ulcers. Not sure if that makes any difference. 
    • trents
      Daughter waiting for appointment

      By trents · Posted

      Duodenal ulcers are not uncommon either and often result from H.Pylori infections. https://www.healthdirect.gov.au/duodenal-ulcer
    • trents
      Rigorous exercise + inflammation/fatigue?

      By trents · Posted

      Just vitamin b1?
    • Scott Adams
      Daughter waiting for appointment

      By Scott Adams · Posted

      I had what was termed "lesions," and normally ulcers are in the stomach, rather than the small intestines. I'm not sure why they would want you to have her continue to eat gluten, since she had a positive blood test, but as her doctor said, if she is uncomfortable and having symptoms why not have her go gluten-free at this point? If her symptoms improve, it would be another indicator that she has celiac disease and/or gluten sensitivity. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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