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Moongirl

Post gluten-free Symptoms...

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Hi everyone.

I was just dx in dec, and have been gluten-free for about 3 weeks.

I am wondering if all my little symptoms are 'normal' withdrawls. Overall I feel 75% then when I did when i was was dx. however there are a few new sypmtoms that have popped up. i woke up one morning and my neck was sore all the way up to my jawline. On the right side there was a little lump, like my lymph gland is swollen. But i can never remember ever feeling it so present even when i have been sick. And its been like this for almost 2 weeks! went to the dr last week and he said it doesnt feel like abnormal swelling, but it is very annoying cause i can feel it when i swollow. Also just yesterday, all of a sudden i felt shakey and felt as if my heart was beating so fast. It only lasted about an hour.

Im just wondering if all this is somehow related to going gluten-free.

Thanks =)

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My lymph nodes get WAAAAAAAAY swollen when I eat something wrong. I don't know why it would happen after you've gone gluten-free, but maybe it's more noticeable now that you didn't have it for a couple weeks.

Nadia

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Maybe going gluten free has thrown your thyroid out of whack. I can remember when I first went gluten-free, it threw my thyroid for a loop. My doctor had to adjust my thyroid meds about three times before we got things right...... I would maybe get your thyroid checked to make sure that's okay.....

Karen

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THe heart thing could be related to consuming gluten and not knowing it. THis has happened to me when I get gluten. Don't know about the swollen lymph node. Give your body time to adjust. It has only been three weeks, but glad you are feeling better. I too felt better right away.

Monica

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Hi everyone.

I was just dx in dec, and have been gluten-free for about 3 weeks.

I am wondering if all my little symptoms are 'normal' withdrawls. Overall I feel 75% then when I did when i was was dx. however there are a few new sypmtoms that have popped up. i woke up one morning and my neck was sore all the way up to my jawline. On the right side there was a little lump, like my lymph gland is swollen. But i can never remember ever feeling it so present even when i have been sick. And its been like this for almost 2 weeks! went to the dr last week and he said it doesnt feel like abnormal swelling, but it is very annoying cause i can feel it when i swollow. Also just yesterday, all of a sudden i felt shakey and felt as if my heart was beating so fast. It only lasted about an hour.

Im just wondering if all this is somehow related to going gluten-free.

Thanks =)

I have had a swollen lymph in my neck since I got sick last March. Even though gluten free comes and goes. Make sure you are not getting hidden gluten like in your shampoo, soaps, makeup etc. Also watch out for cross-contamination. Make sure you have your own toaster and pots and pans and utensils.

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Not to suggest you ignore other possible reasons for swollen glands, but when I went gluten-free (several months ago), I felt awful for the first few weeks - shaky, foggy, achy (almost like having the flu), etc. I think it's the effects of detoxing and maybe withdrawal. I find that everytime I reach a new level of gluten-free (like when I've uncovered a hidden source & eliminated the product) I go through that detoxing again, though not as severe as at first. Also, now that I'm gluten-free, I'm MUCH more sensitive to small amounts and CC. Hang in there!

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Not to suggest you ignore other possible reasons for swollen glands, but when I went gluten-free (several months ago), I felt awful for the first few weeks - shaky, foggy, achy (almost like having the flu), etc. I think it's the effects of detoxing and maybe withdrawal. I find that everytime I reach a new level of gluten-free (like when I've uncovered a hidden source & eliminated the product) I go through that detoxing again, though not as severe as at first. Also, now that I'm gluten-free, I'm MUCH more sensitive to small amounts and CC. Hang in there!

i have been gluten-free for two weeks. I overall feel better but am depressed, and for the past 3 days have had excessive "D" I never have it. So im wondering if its just my adjustment to eating. Even my symptoms did not include diarrea?? Anyone else have this symptom after going gluten-free???

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I have only been diagnosed for four weeks. Since that time I have tried (over Christmas mind you) to go on a gluten-free diet, bnut feel I have been fairly faithful!

One of the things I have noticed in this time has been a sense of having what I escribe as "irritable" feet, legs, hands and arms. It is a s if I have a tingling sensation, an urge to move them, to wring them out, as if I want to get rid of excess energy. Has anybody else had these types of sensations?

I have suffered depression and anxiety as well as panic attacks over the years. Since the gluten-free diet I have had one or two episodes but I am hoping this will improve as I physically improve. I suspect a contributor to my depression since the diagnosis has been my coming to grips with the fact I am nowe a coeliac and have to maintain the diet.

I will also be interested to see if my depression and anxiety improves as I feel for year there has been this viscious circel of having physical symptoms (due to undiagosed celiac disease) and not being able to trace it to anthing physical thinking the cause to be my thinking or attitide to things. At least now I know the physical symptoms were not made up by me but had a real physical cause!

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Guest cassidy
I have only been diagnosed for four weeks. Since that time I have tried (over Christmas mind you) to go on a gluten-free diet, bnut feel I have been fairly faithful!

One of the things I have noticed in this time has been a sense of having what I escribe as "irritable" feet, legs, hands and arms. It is a s if I have a tingling sensation, an urge to move them, to wring them out, as if I want to get rid of excess energy. Has anybody else had these types of sensations?

I have suffered depression and anxiety as well as panic attacks over the years. Since the gluten-free diet I have had one or two episodes but I am hoping this will improve as I physically improve. I suspect a contributor to my depression since the diagnosis has been my coming to grips with the fact I am nowe a coeliac and have to maintain the diet.

I will also be interested to see if my depression and anxiety improves as I feel for year there has been this viscious circel of having physical symptoms (due to undiagosed celiac disease) and not being able to trace it to anthing physical thinking the cause to be my thinking or attitide to things. At least now I know the physical symptoms were not made up by me but had a real physical cause!

The feelings you are having in your legs and arms sounds like restless legs syndrome. They do have medication for that. My husband has it and he has been taking magnesium and that has really helped him. I don't know how that is related to Celiac.

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The feelings you are having in your legs and arms sounds like restless legs syndrome. They do have medication for that. My husband has it and he has been taking magnesium and that has really helped him. I don't know how that is related to Celiac.

Thanks - perhaps I am not absorbing sufficient magnesium because of the malabsorption caused by coeliac disease. As I improve it will be interesting to observe if the "restless ;eg syndrome" subsides. Thanks for your response. It is great to hear and learn from the experience of fellow sufferers and/or sympathisers/understanders.

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I had the same lump in nexk thing I got my thyroid checked countless times -- it was always fine. The doctors didn't seem to think much of it. It seems to coincide with muscle tightness in my neck and shoulders. My neck gets soooo tight. It has gotten better recently with yoga, a massage or two and a new temperpedic pillow. It is likely a deficiency for me too, or a small connective tissue problem as a result of still having high gluten numbers (even though I am free of it). Try a trigger point massage and yoga to see if it helps. And don't forget your vitamins!

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Going gluten-free definitely changed my symptoms. Before going on the diet, I had one problem: gas. Tons of it. It's clear why I went on the diet. Now that aspect of my health is much, much better, but new problems arise upon gluten contamination, such as general malaise, poor bowel movements, difficulty concentrating, etc. Overall, the diet is definitely worthwhile, though.

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