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Looking For A Lab

Claire

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Claire Collaborator
Claire
Posted

I am looking for a Lab that does genetic testing for Gluten Sensitivity. I do not have Celiac. I need a lab that will be covered by insurance.

Thanks for help. Claire

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Rachel--24 Collaborator
Rachel--24
Posted
I am looking for a Lab that does genetic testing for Gluten Sensitivity. I do not have Celiac. I need a lab that will be covered by insurance.

Thanks for help. Claire

Claire, as far as I know Enterolab is the only lab testing for the sensitivity genes. All other labs only test for celiac genes.

StrongerToday Enthusiast
StrongerToday
Posted

You can try Great Smokies at www.gsdl.com. I had them run a food sensitivies panel, which came back saying I was not sensitive to a lot of foods. In hindsight I wouldn't have paid for the tests (although my insurance did reimburse me half of the cost)... I'm learning that my body tells me what I should or shouldn't eat, not a piece of paper.

jenvan Collaborator
jenvan
Posted

Great Plains Labs does a ton of testing and is covered by some insurance. Anthem paid for part of my food intolerance test. I am not sure if they do genes...but they do do a lot of gluten/celiac testing etc. Open Original Shared Link

Nevadan Contributor
Nevadan
Posted

Hi Claire,

I remember reading a post a few months ago that claimed that Cigna insurance had covered some Enterolab testing. Enterolab does provide the procedure codes for filing with an insurance; however, as far as I know one usually has to have a dr's "order" before most insurance co's will cover tests.

George

Claire Collaborator
Claire
Posted
  • Author

Thank you all very much.

It seems that gluten sensitivity is not taken as seriously as Celiac - though the damage can be just as devastating - in fact more so. The intestinal lining will heal. A damaged brain will not. For people with gluten induced brain damage the best to hope for is that the process can be interrrupted and halted. Claire

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    • akebog
      Fusilli Pizzeria, Miller Place, NY

      By akebog · Posted

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

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