Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

I'm sorry to be asking so much. I'm having trouble with my doctors as far as getting in.

Before you went gluten free did you feel sick all of the time or just when you ate gluten? I never know what is going to bother me. It is to the point where my stomach hurts all of the time. I'm just really depressed right now I would just love to know what is wrong with me.

I'm holding of on the enterolab I think until the 9th when I go to my GI. I want to know what she has to say before I spend the money. If she isn't difinitive I'll probably order the kit.

Just a little info. I had my gallbladder out in 97. I've tried Questran. Bentyl , Nulev, finally found relief with Librax. I had a normal colonoscopy. I've had diarrhea and pain about two inches above my navel for 6 months. It goes from mild to doubling me over to the point where I've had to take Tylenol #3. All of my blood work came back normal. So who knows?

Thanks

Share this post


Link to post
Share on other sites

Hi--feel free to ask all the questions you want :) . It is common to feel sick all or most of the time before a Dx or going gluten-free. Although some Celiacs get no GI symptoms, I do, and before gluten-free, I never knew when I was going to get sick, and I didn't associate it with any particular foods at the time. (I had no idea about gluten--had never heard of Celiac until shortly before my Dx, although I had been sick for many years). Good luck at the dr. and keep us posted!

Share this post


Link to post
Share on other sites
Hi--feel free to ask all the questions you want :) . It is common to feel sick all or most of the time before a Dx or going gluten-free. Although some Celiacs get no GI symptoms, I do, and before gluten-free, I never knew when I was going to get sick, and I didn't associate it with any particular foods at the time. (I had no idea about gluten--had never heard of Celiac until shortly before my Dx, although I had been sick for many years). Good luck at the dr. and keep us posted!

I agree, and you should note that the AVERAGE time to diagnose from onset of symptons, in the US is TEN YEARS. (source Celiac.com). Most ppl feel sick most of that time. Sucks :(

Share this post


Link to post
Share on other sites
Guest cassidy

I used to feel sick all the time. I was reading this site wondering what it was like to "get glutened' because I never felt good and didn't realize that things could be any different. Now when I get glutened I say "I feel like I used to feel all the time." My stomach/intestines still hurt when I ate safe food in the beginning, but not as bad as when I ate gluten. I'm guessing that everything is so irritated that it takes a while to heal and start to feel much better.

Share this post


Link to post
Share on other sites

I always felt sick before my diagnosis. I had constant stomach pain and other GI symptoms for about a year before I was diagnosed. It probably took a good 3-4 months before I began feeling better. Each day got a little better and a little easier on the gluten-free diet.

I hope that your doctor's appointment goes well and that you discover the root of your pain soon. This board helped me a lot and most of what I have learned about celiac disease comes from what different members have shared about their experiences. Good luck.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...