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Born And Raised... First Post....


celiacuser12345

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jams Explorer

Hello and Welcome!!!

I am the "friend with tics" from jnifred. I do find that my tics or twiches are worse when I have eaten gluten. It is in my left temple and now starting to affect my left eye. I thought I was going nuts when it first started happening. My doctor couldn't answer me. I am not sure that it is visible to the eye, but I do know when people put their finger on my temple, they freak out!! It is a little gross to most.

Anyway, it mostly happens only when I have gluten. This is not an immediate response. It happens usually the next day and lasts up to a week each time. I agree, cut the gluten out completely and see if that helps.

Good luck!!


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num1habsfan Rising Star

Hey, welcome. Warning when you talk to Lisa's, specify which one ;) There are many of us :P

I'm still waiting to have that always positive/smiley feeling, but its so nice to see there are some Celiac's out there who do! Then again, you've always had Celiac (and I've only had it for 3 years). I'm 21 too, so we probably deal with a lot of the same feelings/issues..

I havent 'cheated' in a while, but I know that feeling of every once in a while having to give in. I know 99% of people with Celiac disagree, but sometimes its too much. And I'd rather have pains for a few days then have a panic attack.

If you ever need anyone to talk to about anything, just email me (you can find my email in my profile :P ), I'm always willing to make new friends! And havent found many around my age lol ..

~lisa~

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  • Recent Activity

    1. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    2. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    3. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    4. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    5. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar


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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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