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Updated Recommendations for Drs. in Oregon/Washington area


Katharine W

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Katharine W Rookie

Hi, I looked up some drs. here for the Oregon area and didn't have much luck. Does anyone have any new recommendations? 

I called Sarah Brendler, from Springfield, OR, and she just retired. I tried to locate Char Glen and Debra Glasser from Portland, and could not find a current location for them. 

Any assistance would be greatly appreciated. 


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GFinDC Veteran
  • 1 month later...
Larzipan Rookie

Hello! I have been seeing Dr. Du Moulin since November and she has helped me SOOO much with rebuilding my digestive tract and immune system after being diagnosed with Celiac last summer. She even discovered a bacteria that had been living in my gut and caused additional food intolerances. She is able to do video appointments too, which is helpful since she is located too far away from me to visit. I highly recommend her! She's the first doctor who actually listened to what I have to say about my symptoms without judgments.  https://renuprogressivemed.com/staff-member/dr-samantha-du-moulin/

  • 2 weeks later...
Katharine W Rookie

I'm seeing Dr. Stephen Wangen from IBS Center right now. I am working on some labs for him to identify food sensitivities. He also gave me some enzyme pills to help digestion and a GI powder. I'm hopeful. He listens well and understands a lot of my frustrations. He usually waits for the labs but decided to try some preliminary things to get me started due to the extent of my pain and the loss of muscle mass. 

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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