Ever have visual issues ?

[DJFL77I]

not sure if this is related to when eating Gluten but I have like a "Laggy" sensation in my vision..  sometimes its worse then can be noticeably better...  My vision itself is clear... no blurry vision.. no double vision..   its just like when I look around it seems like things are kind of "slow loading"... not really sure how to describe it...  or would that be "brain fog" ?

I first noticed it like a week after I started having upset stomach symptoms.. before diagnoses...  lasted a few days then went away....  then came back eventually.. 

I guess I should go get an eye exam? - had one like 2 years ago when I updated my lens prescription...

and a full vitamin and mineral panel? - never had one yet...  only thing I had recently checked was B12 which was normal 490 ? and iron which was normal 58?

 

 

[cyclinglady]

I would stay the course the gluten-free diet.  I had eye issues that resolved on the diet.  It takes time to heal.  Brain fog too.  
 

If your doctor is happy with your B-12 and iron levels, chances are he is satisfied that you are not deficient.  You are probably still able to absorb your vitamins provided you eat a healthy diet.  
 

Were you happy with the nutritionist?  

[DJFL77I]

10 minutes ago, cyclinglady said:

 

Were you happy with the nutritionist?  

no not really..   I have an appointment next Thurs with a dietitian from the local Hospital. 

I think most dietitians are pretty much worthless though..

What are they going to tell me?   Don't eat Gluten...

This one might be decent though because they're getting records from my Dr to look over.

 

If your doctor is happy with your B-12 and iron levels, chances are he is satisfied that you are not deficient.

how can you even know if you're not deficient in all of the other vitamins and minerals if you're not tested 

 

 

[cyclinglady]

Well, I think that normal levels of B-12 and iron, indicate that despite having celiac disease, you have been able to still absorb iron and B-12 or that your stores are sufficient.  You could be deficient in other vitamins and minerals.  That is possible.  Even someone who does not have celiac disease could be deficient if they are not eating a healthy diet.  

 I think a dietician is going to look at your diet and help you choose nutrient dense foods. He or she may recommend supplements based on your health history and what you eat.   For all I know, in your past life you might have considered banana-filled twinkies a fruit.  Some people think they eat healthy, but they do not.  My kid’s vegan friend lives on Oreo cookies and Skittles.  Offer her some real veggies and she declines.  
 

I am one of the few on this forum who does not supplement.   I do not for a variety of reasons.  Supplements are a processed food that is unregulated by our government.  Most raw materials come from places like China and India even though they could be assembled or finished off in the US.  I would like to see or verify the supply chain, but that is not possible today.    And there are studies now indicating that supplements are a waste of money.  They do not work and some may even cause harm.  And how did humans survive all these years without supplements?  Granted, some illnesses due cause deficiencies and celiac disease is one of them.  Talk to your dietician.  Together you can figure it out.  He or she should be able to order any needed tests.  
 

I think you need to be a bit more patient.  You are super anxious.  Go for a run or walk or do some Yoga!  
 

For me, I focus on good food, exercise, and some sunshine.  Despite having autoimmune disease, I am pretty healthy for a person my age.  

Let me add this...I do not know you and  am not a doctor.  I strongly suggest you discuss your concerns with your doctor and your dietician.  They are the experts.  If not satisfied, find another doctor!  

 

Edited July 23, 2020 by cyclinglady

[Awol cast iron stomach]

1 hour ago, cyclinglady said:

 Supplements are a processed food that is unregulated by our government.

Sorry OP I have a question for CL-

I respect you don't like processed food which I agree a supplement would be by definition. I am confused as I am under the impression supplements  are regulated by the FDA.

https://www.fda.gov/consumers/consumer-updates/dietary-supplements

Can you explain why they are not regulated by the FDA if they say they do ? I was not aware the FDA announced they no longer regulate /oversee supplements? Is this new? 

I am confused as the FDA have entered supplement companies and have FDA employees that go over quality control documents pertaining to them and good manufacturing practices and inspect equipment.

Many of us I am sure would appreciate the info you have as ours maybe out of date about FDA.

 

[cyclinglady]

There is some oversight, but not enough.  Not like a prescription or OTC drug.  I subscribe to Consumer Reports.  While not perfect, they have blown the whistle on items like apple juice and rice containing too much arsenic.  

1.  “Manufacturers are not required to demonstrate to the government that their products are effective or safe before they are sold—as they must with prescription and over-the-counter drugs, such as Advil.“

https://www.consumerreports.org/supplements/shop-smarter-for-supplements/

 

2.  “For years, Amazon has battled third-party sellers who list knockoffs of everything from iPhone charging cables to soccer jerseys on its site. Nutritional supplements are another popular target for fakes, as it’s a largely unregulated industry. The US Food and Drug Administration has been criticized—including by former staff—for declining to test dietary supplements for safety and effectiveness the same way it does pharmaceuticals. In this instance, the problems came together: An Amazon merchant sold dupes of genuine probiotics made by Align, a Procter & Gamble brand.”:

https://www.wired.com/story/amazon-fake-supplements/

3.  “Under the Dietary Supplement Health and Education Act (DSHEA)Trusted Source, the FDA isn’t authorized to review dietary supplements for safety and effectiveness before they go to market.

Rather, the FDA’s role in monitoring supplements is more reactionary, only pulling a supplement from shelves or curtailing use of it once a significant number of people report adverse side effects from the product, says Dixon.”

https://www.healthline.com/health-news/taking-supplements-for-nutrients-another-study-says-they-may-not-help-your-health#The-supplement-industry-is-largely-unregulated-by-the-FDA
 

I am sure other members have plenty data to prove that supplements are safe.  I am sure most are.  But do they really work?  Are they really safe?  

Heck just a few years ago, researchers tested a bunch of probiotics.  They contained undisclosed gluten!  22 products and half were contaminated with gluten!  Gastroenterologists were wondering why their patients were not healing (of course they thought it was the patient’s fault.  So, can you see why I am hesitant to endorse supplements?  And we have people who hesitate buying something like Micracle Whip Salad Dressing by Kraft which might be safer than a supposedly safe supplement! And let’s not get into prescription drugs.  We have seen a lot of mistrust with pharmaceuticals.  What are we so willing  to accept unregulated supplements?  
 

Probiotics, gluten contamination: 
https://www.sciencedaily.com/releases/2015/05/150515083232.htm

Finally,  I have complained.  Solution?  This pharmacy actually tests!  They even check for gluten.  They sell prescription drugs, OTC and even vitamins.  I have not tried them yet, but this was the company who presented at Congress this last Fall.  
 

https://www.valisure.com/analysis/

 

Edited July 23, 2020 by cyclinglady

[DJFL77I]

My Dr said I should start taking a multi vitamin...

I just got this one...which someone else here has been taking..

Essential-1™ with 2000 IU Vitamin D3

https://www.procapslabs.com/Products/Details/268447762/Essential-1-with-2000-IU-Vitamin-D3

 

 

 

[knitty kitty]

You might find this website helpful....

USP 

https://www.usp.org/dietary-supplements-herbal-medicines

 

https://www.quality-supplements.org/verified-products/verified-products-listings

 

And, yes, I've had visual problems related to vitamin deficiencies.  

Hope this helps.

[cyclinglady]

4 hours ago, DJFL77I said:

My Dr said I should start taking a multi vitamin...

I just got this one...which someone else here has been taking..

Essential-1™ with 2000 IU Vitamin D3

https://www.procapslabs.com/Products/Details/268447762/Essential-1-with-2000-IU-Vitamin-D3

 

 

 

Good.  It even states it is gluten free!  😊

[DJFL77I]

having a comprehensive eye exam on Monday....

[cyclinglady]

9 minutes ago, DJFL77I said:

having a comprehensive eye exam on Monday....

Good.  I think you are supposed to get an eye exam every two years.  At least I have to go in order to get my contact/glasses prescription renewed.